ArticleBMC psychiatry2023
Active involvement of people with lived experience of suicide in suicide research: a Delphi consensus study.
Article in BMC psychiatry, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.
- Systematic Review and Meta-Analysis of Mortality in Patients With Anorexia Nervosa.The International journal of eating disorders · 2026Pooled it
- Developing Language and Image Use Guidance for Communicating About Suicide, Mental Health Concerns and Alcohol and Other Drug Concerns: An Australian Delphi Study.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2026Article
- The role of lived and living experience in evidence-based decision-making in suicide prevention.Health promotion international · 2026Article
- Co-Designing and Evaluating a Suicide Prevention Workshop for General Practice and Community Staff in Rural South Australia.The Australian journal of rural health · 2026Article
- Co-designing suicide prevention research with mothers of suicidal adolescents - applying McKercher's Model of Care.Research involvement and engagement · 2026Article
- Developing guidelines for supporting employees disclosing suicidal distress while working: a Delphi expert consensus study.BMC public health · 2026Article
- The Psychometric Properties of the Religious Suicide Stigma Measure: A Study of Religious Congregants and Faith Leaders in the USA.Journal of religion and health · 2026Article
- Partnering With Teens With Past Suicide-Related Crises: Development, Application and Refinement of Safety Procedures for Co-Design.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Examining suicide literacy among emerging adult medical students in Puerto Rico.Global mental health (Cambridge, England) · 2026Article
- Our stories matter: a mixed methods survey of lived and living experience perspectives of media and public communication of suicide in Australia.BMJ public health · 2026Article
- "Hopeless but supported in that hopelessness": a qualitative study of how people experience talking to a GP about suicide.Frontiers in psychiatry · 2026Article
- Putting Lived Experience at the Centre: A Critical Review of Multidisciplinary, Person-Centred Mental Health Care.Journal of multidisciplinary healthcare · 2026Review
- Evaluating a Codesign Process in Mental Health: 'Harnessing the Power of Together'.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- Lived Experience Participation in Suicide Prevention Activities in Australia, a Scoping Review.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Understanding Suicide Stigma in Fly-In/Fly-Out Workers: A Thematic Analysis of Attitudes Towards Suicide, Help-Seeking and Help-Offering.International journal of environmental research and public health · 2025Article
- 'Wisdom Is Knowledge Plus Experience': Qualitative Study of Lived Experience and Researcher Perspectives on Suicide Research Co-Production.International journal of mental health nursing · 2025Article
- Codeveloping an Online Resource for People Bereaved by Suicide: Mixed Methods User-Centered Study.JMIR mental health · 2025Article
- Towards development of guidelines for harnessing implementation science for suicide prevention: an international Delphi expert consensus study.BMJ public health · 2025Article
- Article
- Improving mechanisms of involvement of people with lived experience in decision-making processes.World psychiatry : official journal of the World Psychiatric Association (WPA) · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe importance and value of involvement of people with lived experience of suicide has been recognized in suicide research and prevention. Nonetheless, clear guidance on research collaboration and co-production is lacking. This study aimed to address this gap by developing a set of guidelines on active involvement of people with lived experience of suicide in suicide studies., i.e., conducting research with or by people with lived experience, rather than to, about or for them.
methodsThe Delphi method was used to determine statements on best practice for the active involvement of people with lived experience of suicide in suicide research. Statements were compiled through a systematic search of the scientific and grey literature, and reviewing qualitative data from a recent related study conducted by the authors. Two expert panels: people with lived experience of suicide (n = 44) and suicide researchers (n = 29) rated statements over three rounds of an online survey. Statements endorsed by at least 80% of panellists of each panel were included in the guidelines.
resultsPanellists endorsed 96 out of 126 statements in 17 sections covering the full research cycle from deciding on the research question and securing funding, to conducting research and disseminating and implementing outcomes. Overall, there was a substantial level of agreement between the two panels regarding support from research institutions, collaboration and co-production, communication and shared decision making, conducting research, self-care, acknowledgment, and dissemination and implementation. However, panels also disagreed on specific statements regarding representativeness and diversity, managing expectations, time and budgeting, training, and self-disclosure.
conclusionsThis study identified consensus recommendations on active involvement of people with lived experience of suicide in suicide research, including co-production. Support from research institutions and funders, and training on co-production for researchers and people with lived experience, are needed for successful implementation and uptake of the guidelines.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.