Evidence map›Paper›PMID 37429634›Full record

ArticleBJGP open2023

UK research data resources based on primary care electronic health records: review and summary for potential users.

Lara Edwards, James Pickett, Darren M Ashcroft, Hajira Dambha-Miller, Azeem Majeed, Christian Mallen, Irene Petersen, Nadeem Qureshi, Tjeerd van Staa, Gary Abel and 5 more

Abstract read
In one paragraph

Article in BJGP open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed.

  1. Article
  2. Review
  3. Review
  4. Article
  5. Article
  6. Article
  7. Article
  8. Evaluating Frailty Index Integrity: Insights from an International Network Study.medRxiv : the preprint server for health sciences · 2026
    Article
  9. Article
  10. Article
  11. Observational
  12. Using data systems to conduct health research in the Caribbean: challenges during the COVID-19 pandemic.Revista panamericana de salud publica = Pan American journal of public health · 2025
    Article
  13. Review
  14. Article
  15. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Lara EdwardsHealth Data Research UK (HDR UK), London, UK.ORCID https://orcid.org/0000-0003-3018-5459
James PickettHealth Data Research UK (HDR UK), London, UK.ORCID https://orcid.org/0000-0002-2657-0795
Darren M AshcroftCentre for Pharmacoepidemiology and Drug Safety, NIHR Greater Manchester Patient Safety Translational Research Centre, School of Health Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0002-2958-915X
Hajira Dambha-MillerPrimary Care Research Centre, University of Southampton, Southampton, UK.ORCID https://orcid.org/0000-0003-0175-443X
Azeem MajeedPrimary Care and Public Health, Imperial College London, London, UK.ORCID https://orcid.org/0000-0002-2357-9858
Christian MallenInstitute for Global Health, Keele University, Keele, UK.ORCID https://orcid.org/0000-0002-2677-1028
Irene PetersenDepartment of Primary Care & Population Health, Institute of Epidemiology & Health, University College London, London, UK.ORCID https://orcid.org/0000-0002-0037-7524
Nadeem QureshiCentre for Academic Primary Care, University of Nottingham, Nottingham, UK.ORCID https://orcid.org/0000-0003-4909-0644
Tjeerd van StaaHealth eResearch Centre, University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0001-9363-742X
Gary AbelDepartment of Health and Community Sciences (Medical School), Faculty of Health and Life Sciences, University of Exeter, Exeter, UK.ORCID https://orcid.org/0000-0003-2231-5161
Chris CarvalhoClinical Effectiveness Group, Queen Mary University of London, London, UK.ORCID https://orcid.org/0000-0002-4114-9210
Rachel DenholmPopulation Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK.ORCID https://orcid.org/0000-0002-8067-5440
Evangelos KontopantelisDivision of Informatics, Imaging and Data Sciences, University of Manchester, Manchester, UK.ORCID https://orcid.org/0000-0001-6450-5815
Ayoyemi MacaulayHealth Data Research UK (HDR UK), London, UK.ORCID https://orcid.org/0009-0001-2909-7147
John MacleodPopulation Health Sciences, Bristol Medical School, University of Bristol, Bristol, UK John.Macleod@bristol.ac.uk.ORCID https://orcid.org/0000-0001-8202-1144

Funding

Medical Research Council MC_PC_20058
6 · The paper itself

Abstract

backgroundThe range and scope of electronic health record (EHR) data assets in the UK has recently increased, which has been mainly in response to the COVID-19 pandemic. Summarising and comparing the large primary care resources will help researchers to choose the data resources most suited to their needs.

aimTo describe the current landscape of UK EHR databases and considerations of access and use of these resources relevant to researchers. DESIGN &

settingNarrative review of EHR databases in the UK.

methodInformation was collected from the Health Data Research Innovation Gateway, publicly available websites and other published data, and from key informants. The eligibility criteria were population-based open-access databases sampling EHRs across the whole population of one or more countries in the UK. Published database characteristics were extracted and summarised, and these were corroborated with resource providers. Results were synthesised narratively.

resultsNine large national primary care EHR data resources were identified and summarised. These resources are enhanced by linkage to other administrative data to a varying extent. Resources are mainly intended to support observational research, although some can support experimental studies. There is considerable overlap of populations covered. While all resources are accessible to bona fide researchers, access mechanisms, costs, timescales, and other considerations vary across databases.

conclusionResearchers are currently able to access primary care EHR data from several sources. Choice of data resource is likely to be driven by project needs and access considerations. The landscape of data resources based on primary care EHRs in the UK continues to evolve.

Indexed as

electronic health recordspopulationpopulation level linked dataprimary care databasesprimary health care

Identifiers

PMID37429634
PMCPMC10646196

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.