Evidence map›Paper›PMID 37421342›Full record

ArticleDevelopmental medicine and child neurology2024

Male perspectives on clinical communication about sexual health in spina bifida.

James T Rague, Josephine Hirsch, Ilina Rosoklija, Theresa Meyer, Courtney Streur, Stephanie Kielb, Earl Y Cheng, Diana K Bowen, Elizabeth B Yerkes, David I Chu

Abstract read
In one paragraph

Article in Developmental medicine and child neurology, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

James T RagueDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.ORCID 0000-0002-8089-5865
Josephine HirschDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Ilina RosoklijaDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Theresa MeyerDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Courtney StreurDivision of Urology, CS Mott Children's Hospital, University of Michigan, Ann Arbor, MI, USA.
Stephanie KielbDepartment of Urology, Northwestern Feinberg School of Medicine, Chicago, IL, USA.
Earl Y ChengDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Diana K BowenDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
Elizabeth B YerkesDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.
David I ChuDivision of Urology, Ann & Robert H Lurie Children's Hospital of Chicago, Chicago, IL, USA.

Funding

Improving Kidney Health Assessment in Young Patients with Spina BifidaK23DK125670 · NIDDK · LURIE CHILDREN'S HOSPITAL OF CHICAGO · PI CHU, DAVID · 2020 to 2024
$952k
Developing a reproductive health curriculum for adolescent girls with physical disabilitiesK23HD105987 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI STREUR, COURTNEY S · 2022 to 2024
$509k
NICHD NIH HHS K23 HD105987NIDDK NIH HHS K23 DK125670
6 · The paper itself

Abstract

aimTo assess perspectives on clinical communication about sexual health in young adult males with spina bifida.

methodSemi-structured interviews were conducted between February and May 2021 with males at least 18 years of age with spina bifida to assess their perspectives and experiences of sexual health communication with clinicians. Demographic and clinical characteristics were obtained from chart review and a survey of patients. Interviews were transcribed verbatim, and conventional content analysis was used for transcript coding.

resultsTwenty individuals participated with a median age of 22 years 6 months (range 18-29 years). Sixteen had myelomeningocele. Most identified as heterosexual (n = 17) and not sexually active (n = 13). Barriers and facilitators of successful interactions were identified. Barriers for participants included general discomfort with talking about sex and variability in individual preferences for how conversations occur. Facilitators included participants' comfort with their urologist and discussing sex in relation to disability. Suggestions for improving discussions included (1) notifying individuals that discussion about sex will occur before clinic visits; (2) creating space for discussions; (3) respecting individuals' readiness to discuss; and (4) making discussions disability specific.

interpretationYoung adult males with spina bifida are interested in discussing sexual health with their clinicians. Great variability exists about conversation preferences, emphasizing the need to individualize clinical communication about sex. Current health guidelines for males may not be in line with individuals' wishes. WHAT THIS PAPER ADDS: Great variability exists in individual preference around sexual health communication. Patient-level barriers hinder successful conversations about sex. Individuals have great insight into how conversations about sex can be improved.

Indexed as

Health CommunicationSexual HealthSpinal DysraphismChild, PreschoolHumansInfantMaleSexual BehaviorYoung Adult

Identifiers

PMID37421342
PMCPMC10772204

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.