Observational studyJournal of medical Internet research2023
Factors Influencing the Sharing of Personal Health Data Based on the Integrated Theory of Privacy Calculus and Theory of Planned Behaviors Framework: Results of a Cross-Sectional Study of Chinese Patients in the Yangtze River Delta.
Observational study in Journal of medical Internet research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- Digital Literacy and Interpersonal Trust as Predictors of Willingness to Share Patient-Generated Health Data Among Korean Internet Users: Cross-Sectional Study Using Privacy Calculus and Communication Privacy Management Theories.Journal of medical Internet research · 2026Article
- Privacy concerns regarding personal health information in Myanmar: A cross-sectional survey in a least developed country.PLOS digital health · 2026Article
- Influencing factors of individuals' willingness to share public health data in big data-driven healthcare: an empirical study based on China.Frontiers in public health · 2026Article
- Can social support improve Mpox care-seeking among men who have sex with men through stigma reduction: a chain mediation analysis from China.Global health research and policy · 2025Article
- Worldwide willingness to share health data high but privacy, consent and transparency paramount, a meta-analysis.NPJ digital medicine · 2025Article
- Determinants of consent for electronic health information exchange: an observational retrospective study.Health research policy and systems · 2025Observational
- Public perceptions and engagement in mHealth: a European survey on attitudes toward health apps use and data sharing.European journal of public health · 2025Article
- Heterogeneity in willingness to share personal health information: a nationwide cluster analysis of 20,000 adults in Japan.Archives of public health = Archives belges de sante publique · 2025Article
- Intentions of healthcare seeking and self-isolation for MPOX among men who have sex with men in China: a national cross-sectional study.Emerging microbes & infections · 2024Article
- A study on user willingness to participate in an adverse drug event information sharing system.BMC public health · 2024Article
- Article
- Equity and efficiency of health resource allocation in the Chengdu-Chongqing Economic Circle of China.Frontiers in public health · 2024Article
- Trust transfer in digital healthcare: The role of self-service systems in reducing patient treatment barriers.Digital healthArticle
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe health care system in China is fragmented, and the distribution of high-quality resources remains uneven and irrational. Information sharing is essential to the development of an integrated health care system and maximizing its benefits. Nevertheless, data sharing raises concerns regarding the privacy and confidentiality of personal health information, which affect the willingness of patients to share information.
objectiveThis study aims to investigate patients' willingness to share personal health data at different levels of maternal and child specialized hospitals in China, to propose and test a conceptual model to identify key influencing factors, and to provide countermeasures and suggestions to improve the level of data sharing.
methodsA research framework based on the Theory of Privacy Calculus and the Theory of Planned Behavior was developed and empirically tested through a cross-sectional field survey from September 2022 to October 2022 in the Yangtze River Delta region, China. A 33-item measurement instrument was developed. Descriptive statistics, chi-square tests, and logistic regression analyses were conducted to characterize the willingness of sharing personal health data and differences by sociodemographic factors. Structural equation modeling was used to assess the reliability and validity of the measurement as well as to test the research hypotheses. The STROBE (Strengthening the Reporting of Observational Studies in Epidemiology) checklist for cross-sectional studies was applied for reporting results.
resultsThe empirical framework had a good fit with the chi-square/degree of freedom (χ
conclusionsThis study contributes to the literature on personal health data sharing by integrating the Theory of Privacy Calculus and the Theory of Planned Behavior. Most Chinese patients are willing to share their personal health data, which is primarily motivated by moral concerns to improve public health and assist in the diagnosis and treatment of illnesses. Patients with no prior experience with personal information disclosure and those who have tertiary hospital visits were more likely to share their health data. Practical guidelines are provided to health policy makers and health care practitioners to encourage patients to share their personal health information.
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