Evidence map›Paper›PMID 37407969›Full record

ArticleBMC palliative care2023

The dignity of terminally ill children in pediatric palliative care: perspectives of parents and healthcare providers.

Siyu Cai, Qiaohong Guo, Junyi Lin, Chanjuan Deng, Huijun Li, Xuan Zhou

Abstract read
In one paragraph

Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. End of life care in paediatric settings: UK national survey.BMJ supportive & palliative care · 2025
    Article
  4. Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Siyu CaiCenter for Clinical Epidemiology and Evidence-based Medicine, Beijing Children's Hospital, Capital Medical University, National Center for Children's Health, Beijing, 100045, China.
Qiaohong GuoSchool of Nursing, Capital Medical University, 10 Xitoutiao, Youanmen Wai, Fengtai District, Beijing, 100069, China. qguo@ccmu.edu.cn.
Junyi LinSchool of Nursing, Capital Medical University, 10 Xitoutiao, Youanmen Wai, Fengtai District, Beijing, 100069, China.
Chanjuan DengSchool of Nursing, Capital Medical University, 10 Xitoutiao, Youanmen Wai, Fengtai District, Beijing, 100069, China.
Huijun LiDepartment of Nursing, Beijing Children's Hospital, Capital Medical University, National Center for Children's Health, Beijing, 100045, China.
Xuan ZhouBeijing Key Laboratory of Pediatric Hematology Oncology, Key Laboratory of Major Diseases in Children, Hematology Center, Beijing Children's Hospital, National Key Discipline of Pediatrics (Capital Medical University), Ministry of Education, Capital Medical University, National Center for Children's Health, 56 South Lishi Road, Xicheng District, Beijing, 100045, China. bchppc@163.com.

Funding

Beijing Natural Science Foundation 7232001Shiyu Palliative Care Research Fund · Children's Special 2023ZD01
6 · The paper itself

Abstract

backgroundThe Chochinov Dignity Model was developed based on a cohort of adult patients with advanced cancer, but its role among dying children is not clear. This study aims to develop a model of dignity for children receiving pediatric palliative care based on the Chochinov Dignity Model.

methodsThis is a descriptive qualitative study. Participants included a total of 11 parents and 14 healthcare providers who were recruited from a tertiary children's hospital in Beijing and the Pediatric Palliative Care Subspecialty Group of the Pediatrics Society of the Chinese Medical Association using purposive sampling. Thematic framework analysis was used to analyze data.

resultsThe themes of the empirical Dignity Model were broadly supported in this study, but some themes were interpreted differently in the child population. Compared with the original model, some child-specific themes were identified including acknowledging regret, a sense of security, the company of important loved ones, realizing unfinished wishes, decent and dignified death, resolving family disputes, and fairness.

conclusionsThis is the first study on Dignity Model for terminal children. Knowledge of children's dignity can promote reflection of healthcare providers and caregivers regarding the values underlying their performance in pediatric palliative care, and develop certain practical interventions to strengthen children and their families' sense of dignity at end of life.

Indexed as

Palliative CareTerminally IllAdultChildHealth PersonnelHumansParentsQualitative ResearchRespectDignityMainland ChinaPediatric Palliative careTerminally ill children

Identifiers

PMID37407969
PMCPMC10320906

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.