Evidence map›Paper›PMID 37405541›Full record

ArticleJournal of patient-reported outcomes2023

Experiences of being at high-risk during the COVID-19 pandemic and its impact on emotional well-being and daily life in people with chronic conditions: a qualitative study.

Caroline Trillingsgaard Mejdahl, Pernille Bjørnholt Nielsen, Lise Arnth Nielsen, Astrid Fyrstenborg Christensen, Berit Kjærside Nielsen

Open access · goldAbstract read
In one paragraph

Article in Journal of patient-reported outcomes, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
1.3field-weighted citation impact, top 21% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it, 4 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 1 country.

Caroline Trillingsgaard MejdahlDEFACTUM - Public Health Research, Central Denmark Region, Olof Palmes Allé 15, Aarhus N, DK-8200, Denmark. carmej@rm.dk.ORCID 0000-0001-7361-6082
Pernille Bjørnholt NielsenDEFACTUM - Public Health Research, Central Denmark Region, Olof Palmes Allé 15, Aarhus N, DK-8200, Denmark.
Lise Arnth NielsenDEFACTUM - Public Health Research, Central Denmark Region, Olof Palmes Allé 15, Aarhus N, DK-8200, Denmark.
Astrid Fyrstenborg ChristensenDEFACTUM - Public Health Research, Central Denmark Region, Olof Palmes Allé 15, Aarhus N, DK-8200, Denmark.
Berit Kjærside NielsenDEFACTUM - Public Health Research, Central Denmark Region, Olof Palmes Allé 15, Aarhus N, DK-8200, Denmark.
Central Denmark Region · DK

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundWith its health risks and extensive disruption to everyday life, the SARS-CoV-2 (COVID-19) pandemic has affected the lives of billions of people. People with chronic conditions are particularly susceptible to severe illness if infected by COVID-19, and they have repeatedly been urged to take stringent steps to 'shield' themselves from the virus. It is argued that the negative impact of isolation and other lockdown-related restrictions on emotional well-being and daily life may be most prominent among people at increased risk for severe illness from COVID-19. This qualitative thematic analysis aimed to explore how individuals with chronic conditions perceived the risk posed by COVID-19 and to understand how being at high risk affected their emotional well-being and everyday life.

methodsThe study is a thematic analysis of qualitative data consisting of semi-structured interviews with adults affected by at least one chronic condition supplemented with free text comments from a PRO-based survey.

resultsBased on 17 semi-structured interviews and 144 free text comments from a PRO-based survey three thematic patterns representing diverse COVID-19-related risk experiences were extracted: (1) Feeling vulnerable and at risk, (2) Uncertainty about being at risk, and (3) Distancing from the high-risk label.

conclusionsThe risk of COVID-19 impacted the participants' everyday lives and emotional well-being in various ways. Some participants felt vulnerable and at risk causing them and their families to take on far-reaching precautions with significant consequences for their everyday life and emotional well-being. Some participants expressed uncertainty associated with whether they were at increased risk. Such uncertainty gave rise to dilemmas about how to navigate their everyday life. Other participants did not identify themselves as at higher risk and took no special precautions. Such a lack of perceived risk may undermine their motivation for taking preventive measures, which calls for public attention regarding current or future pandemics.

Indexed as

COVID-19AdultCommunicable Disease ControlEmotionsHumansPandemicsSARS-CoV-2Chronic conditionsCOVID-19Emotional well-beingEveryday lifeQualitativeRiskThematic analysis

Identifiers

PMID37405541
PMCPMC10323064
OpenAlexW4383187023

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.