Evidence map›Paper›PMID 37404804›Full record

ArticleFrontiers in medicine2023

The ethical challenges of personalized digital health.

Els Maeckelberghe, Kinga Zdunek, Sara Marceglia, Bobbie Farsides, Michael Rigby

Open access · goldAbstract read
In one paragraph

Article in Frontiers in medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed
10.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 36 citations in OpenAlex.

  1. Feasibility of a co-designed and personalised intervention to improve vegetable intake in rural-dwelling young adults.The international journal of behavioral nutrition and physical activity · 2025
    Trial
  2. Review
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  13. Digital twins: a new paradigm in oncology in the era of big data.ESMO real world data and digital oncology · 2024
    Review
  14. Article
  15. Article
  16. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 5 institutions in 4 countries.

Els MaeckelbergheBeatrix Children's Hospital, University Medical Center Groningen, University of Groningen, Groningen, Netherlands.
Kinga ZdunekHealth Education Unit, Medical University of Lublin, Lublin, Poland.
Sara MarcegliaFaculty of Clinical Engineering, University of Trieste, Trieste, Italy.
Bobbie FarsidesBrighton and Sussex Medical School, University of Sussex, Brighton, United Kingdom.
Michael RigbySchool of Social, Political and Global Studies and School of Primary, Community and Social Care, Keele University, Keele, United Kingdom.
Keele University · GBMedical University of Lublin · PLUniversity Medical Center Groningen · NLUniversity of Sussex · GBUniversity of Trieste · IT

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Personalized digital health systems (pHealth) bring together in sharp juxtaposition very different yet hopefully complementary moral principles in the shared objectives of optimizing health care and the health status of individual citizens while maximizing the application of robust clinical evidence through harnessing powerful and often complex modern data-handling technologies. Principles brought together include respecting the confidentiality of the patient-clinician relationship, the need for controlled information sharing in teamwork and shared care, benefitting from healthcare knowledge obtained from real-world population-level outcomes, and the recognition of different cultures and care settings. This paper outlines the clinical process as enhanced through digital health, reports on the examination of the new issues raised by the computerization of health data, outlines initiatives and policies to balance the harnessing of innovation with control of adverse effects, and emphasizes the importance of the context of use and citizen and user acceptance. The importance of addressing ethical issues throughout the life cycle of design, provision, and use of a pHealth system is explained, and a variety of situation-relevant frameworks are presented to enable a philosophy of responsible innovation, matching the best use of enabling technology with the creation of a culture and context of trustworthiness.

Indexed as

connectivityconsentethicsevaluationevidencepersonalized healthpolicytrust

Identifiers

PMID37404804
PMCPMC10316710
OpenAlexW4381190547

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.