ArticleFrontiers in psychology2023
Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire.
Article in Frontiers in psychology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
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Who cites it
4 citing papers in PubMed.
- Burden of Depression, Anxiety, and Stress in Caregivers at Congenital Heart Surgery Clinic.Pediatric cardiology · 2026Article
- Effect of Chronic Pediatric Heart Conditions on Family Dynamics in Saudi Arabia: A Cross-Sectional Study.Cureus · 2025Article
- Family caregiver frailty in adult congenital heart disease is overlooked: A call to action.International journal of cardiology. Congenital heart disease · 2025Article
- Advances and unmet needs in pharmacologic therapy for pediatric heart failure: Insights from the 2025 International Society for Heart and Lung Transplantation Guidelines.Annals of pediatric cardiologyArticle
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Authors and funding
4 authors.
Funding
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Abstract
Background: Illness in a child with cardiac disease causes stress, brings additional responsibilities, reorganizes family life, and changes the functioning of the family. Aim: This study aimed to validate a new questionnaire evaluating the life situations of caregivers/parents of children with congenital heart disease (CHD) and/or other cardiac diseases (OCD). Materials and methods: The questionnaire comprised 10 questions aimed at assessing the life situation of an ill child's caregiver in two main areas: personal and spiritual. The total score of the questionnaire assessing the life situation of the caregiver of a child with a CHD and/or OCD can range from 0 to 32 points, with scores <26 indicating a poor, 25 to 32 indicating an average, and >32 indicating a good level of life situation in the personal sphere of the caregiver. The questionnaire was assessed using Cronbach's alpha tests, and repeatability was assessed using Cohen's Kappa test (retest) within a time interval of two to 4 weeks from the first measurement. Results: The research covered 50 respondents. Cohesion in the personal sphere obtained a satisfactory value of Cronbach's Conclusion: The Life Situation Assessment Questionnaire for caregivers of children with CHD and OCD is a reliable and homogeneous tool for measuring the functioning of parents in the event of a child's illness.
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