ArticleBMC palliative care2023
Advanced directives' knowledge among Portuguese palliative patients and caregivers: do the sociodemographic factors influence it? A cross-sectional survey.
Article in BMC palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05090072 (Advanced Directives in Palliative Care), which is not on this map. Cited by 3 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Advanced Directives in Palliative Care: Physician's Role on Caregiver's Empowerment as Patient's Surrogates
Who cites it
3 citing papers in PubMed.
- Inclusive palliative care for LGBTQIA+ individuals: A socioecological perspective on barriers and enablers.Palliative & supportive care · 2025Article
- Attitudes of the Portuguese population towards advance directives: an online survey.BMC medical ethics · 2024Article
- Advance Directives in Portugal: A Qualitative Survey.Healthcare (Basel, Switzerland) · 2024Article
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2 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundThe influence of demographic factors on the completion and knowledge of the Portuguese Advance Directives (PAD) and the Health Care Proxy's (HCP) role is still not clear.
objectivesTo identify sociodemographic features associated with knowledge and adherence to PAD and HCP in palliative care.
designCross-Sectional analysis of the sociodemographic data, PAD and HCP role knowledge, and PAD Register from a group of Portuguese palliative patients and their caregivers enrolled on the DAVPAL trial to test the PAD efficacy in promoting better concordance between patients and caregivers.
participantsOne hundred twenty participants (60 palliative patients and 60 caregivers).
methodsAfter enrollment, the participants' sociodemographic data was acquired, their knowledge of PAD and the role of an HCP was questioned, and their prior register of the PAD was asked.
results60 patients and 60 caregivers were included (n=120), with differences among them regarding age (p<.001), gender (p=.003), education (p<.001), job (p<.001), marital status (p=.043), and access to the internet (p=.003), but not regarding religion (p=.21). Only 13.3% of the participants were aware of PAD, 15.0% were aware of the HCP role, and 5.0% had previously filled a PAD. Religious beliefs (Non-Catholic) were the only sociodemographic factor significantly related to these three topics.
conclusionsThere is low awareness of PAD and the HCP's role in palliative care, and there is higher knowledge on these topics among non-Catholic individuals. End-of-life decisions seem to be influenced by similarities in religious beliefs between patients and HCP. Improving education is necessary, namely in palliative care.
trial registrationClinicalTrials.gov ID NCT05090072 . Retrospectively registered on 22/10/2021.
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