ReviewBMC public health2023
A review of reviews exploring patient and public involvement in population health research and development of tools containing best practice guidance.
Review in BMC public health, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patients' perspectives on medication adherence feedback interventions for managing long-term medications: a systematic review of qualitative evidence.International journal of clinical pharmacy · 2026Pooled it
- Facilitators of and barriers to patient and public involvement in mental health research within university settings: a systematic review and meta-synthesis.Psychological medicine · 2025Pooled it
- Preparing the next generation of health researchers by embedding public and patient engagement into Canadian graduate education: reflections from graduate students.Research involvement and engagement · 2026Article
- Where are the Public in Prevention Science? A Scoping Review of Public Involvement in the Development and Evaluation of Family-Based Prevention Interventions.Journal of prevention (2022) · 2026Review
- Co-Designing Wellbeing Initiatives With Rural Adolescents: What Works, What Doesn't, and Why.Health promotion journal of Australia : official journal of Australian Association of Health Promotion Professionals · 2026Article
- A case study of patient and public involvement in sepsis genomics research.Research involvement and engagement · 2026Article
- How Do We Achieve Impactful Patient and Public Involvement and Engagement in Statistical Methodology Research? A Qualitative Research Protocol.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Development of Data-Driven Models for Just-in-Time Digital Self-Management Advice to Improve Physical Functioning in Hip and Knee Osteoarthritis: Protocol for the e-cOAch Cross-Over Study.JMIR research protocols · 2026Article
- Tensions in patient involvement and engagement in health research and development: a qualitative interview study with key actors.Research involvement and engagement · 2026Article
- Evolution of Patient and Public Involvement and Engagement in Health-Related Research: A Concept Analysis.Journal of advanced nursing · 2026Review
- From tokenism to transformation: lessons from the TOGETHER study for building inclusive and equitable research.Research involvement and engagement · 2026Article
- Patient and public involvement in pulmonary embolism research: insights from the development of a pulmonary embolism follow-up care model.Research involvement and engagement · 2026Article
- Benefits of public engagement in research and barriers to participation: a UK-based survey of academic scientists and support staff including international respondents.Immunology and cell biology · 2026Article
- Social determinants of health equity for people with pain: from understanding to action.Pain reports · 2026Article
- Combining Listening Cafés and a Games-Based Co-Design Approach for Public Involvement With Underserved Communities: A Methodology and Lessons Learned From Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Parent and child experiences of research participation and retention intentions in a Japanese birth cohort: insights from the Japan Environment and Children's Study (JECS).Environmental health and preventive medicine · 2026Article
- An international cross-sectional study of dementia researchers' own perspectives on patient and public involvement.Scientific reports · 2025Article
- Navigating care together: developing a collaborative checklist to improve care for children with intellectual disabilities.Research involvement and engagement · 2025Article
- Patient and Public Involvement in Action: Shaping an Intergenerational Engagement Intervention in a Long-Term Care Facility in China.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Ganz Salzburg bewegen [All of Salzburg Moving]: a large-scale public involvement project with underserved groups, for the co-design of local and contextualized physical activity promotion concepts.Research involvement and engagement · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPatient and public involvement (PPI) is increasingly seen as something that is integral to research and of importance to research funders. There is general recognition that PPI is the right thing to do for both moral and practical reasons. The aim of this review of reviews is to examine how PPI can be done 'properly' by looking at the evidence that exists from published reviews and assessing it against the UK Standards for Public Involvement in Research, as well as examining the specific features of population health research that can make PPI more challenging.
methodsA review of reviews and development of best practice guidance was carried out following the 5-stage Framework Synthesis method.
resultsIn total 31 reviews were included. There is a lack of current research or clarity around Governance and Impact when findings are mapped against UK Standards for Public Involvement in Research. It was also clear that there is little knowledge around PPI with under-represented groups. There are gaps in knowledge about how to ensure key specific attributes of population health research are addressed for PPI team members - particularly around how to deal with complexity and the data-driven nature of the research. Four tools were produced for researchers and PPI members to further improve their PPI activity within population health research and health research more generally, including a framework of recommended actions to address PPI in population health research, and guidance on integrating PPI based on the UK Standards for Public Involvement in Research.
conclusionsFacilitating PPI in population health research is challenging due to the nature of this type of research and there is far less evidence on how to do PPI well in this context. The tools can help researchers identify key aspects of PPI that can be integrated when designing PPI within projects. Findings also highlight specific areas where more research or discussion is needed.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.