ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023
How do older adults receiving aged care services understand and respond to the EQ-5D-5L? A think-aloud study in residential care.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Preference-based measures in people with dementia: a systematic review of psychometric properties.Health and quality of life outcomes · 2026Pooled it
- Proxy reports on the EQ-5D-5L in residential aged care facilities: a validation study.Health and quality of life outcomes · 2026Trial
- A Review of the Application of Generic Preference-Based Instruments with Older People Across Care Settings.Applied health economics and health policy · 2026Review
- Further Development and Validation of a Measure of Compassionate Healthcare in Action.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- A new health economic measure for improving the health and wellbeing of older Australians in subacute care settings: a study protocol.BMC geriatrics · 2026Article
- Bridging the gap: beyond "overreach" in ECPR rewarming for hypothermic cardiac arrest in older patients.Scandinavian journal of trauma, resuscitation and emergency medicine · 2026Article
- Quality of life for middle and older aged people with chronic conditions in primary care: a cross-sectional study.BMC primary care · 2026Observational
- The psychometric performance of the EQ-5D-5L composite and component items in the U.S. General population and by age group.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Validation of a quality-of-life measure for older people using urgent and emergency care.Health and quality of life outcomes · 2025Article
- Health-Related Quality of Life in Patients with Friedreich Ataxia Using Mobility Assistive Technologies: Limited Fit of the EQ-5D-3L Mobility Dimension.Neurology and therapy · 2025Article
- Health and Well-Being of Older People in the City of Valencia: A Comprehensive Study.Healthcare (Basel, Switzerland) · 2024Article
- How do children understand and respond to the EQ-5D-Y-3L? A mixed methods study in a community-based sample of 6-12-year-olds.Health and quality of life outcomes · 2024Article
- How do patients interpret and respond to a novel patient-reported eastern cooperative oncology group performance status (ECOG)?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Examining interrater agreement between self-report and proxy-report responses for the quality of life-aged care consumers (QOL-ACC) instrument.Journal of patient-reported outcomes · 2024Article
- Exploring older people's understanding of the QOL-ACC, a new preference-based quality-of-life measure, for quality assessment and economic evaluation in aged care: the impact of cognitive impairment and dementia.Health and quality of life outcomes · 2024Article
- Discrepancies between self- and proxy-rated quality of life in people living with dementia.Alzheimer's & dementia (New York, N. Y.)Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeThe EQ-5D-5L is a preference-based instrument for measuring and valuing health-related quality of life (HRQoL). The EQ-5D-5L has been used extensively in economic evaluation, including in aged care. However, older adults' understanding of the EQ-5D-5L has not been comprehensively investigated to date. This research aimed to assess older adults' understanding of the EQ-5D-5L using a think-aloud protocol with two cognition groups: no cognitive impairment and mild/moderate cognitive impairment.
methodsParticipants' cognition was assessed using the Standardised Mini-Mental State Examination (SMMSE). Face-to face interviews were conducted with concurrent and retrospective think-aloud encouraged through verbal probing. Audio recordings were transcribed, and qualitative analysis, informed by the Tourangeau four-stage Response Model (comprehension, retrieval, decision process, response process) was conducted in NVivo.
resultsIn total, 46 older adults (age 65 +) were recruited from 10 residential care facilities across South Australia (n = 25 no cognitive impairment, n = 21 mild/moderate cognitive impairment). Comprehension, retrieval, judgement and response mapping issues were common across all cognition levels and EQ-5D-5L dimensions. The two dimensions resulting in the most response issues were usual activities and personal care.
conclusionOlder adults may bring a different understanding to the EQ-5D-5L descriptive system than that expected given testing with general population samples. Dimension descriptors that are more relevant to this population may facilitate responses that better align with the underlying EQ-5D-5L concept model.
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