Evidence map›Paper›PMID 37384158›Full record

ArticlePEC innovation2023

Home values and experiences navigation track (HomeVENT): Supporting decisions about pediatric home ventilation.

Renee D Boss, Holly H Vo, Nicholas A Jabre, Jennifer Shepard, Amanda Mercer, Anne McDermott, Chisa L Lanier, Yuanyuan Ding, Benjamin S Wilfond, Carrie M Henderson

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in PEC innovation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Renee D BossPediatrics, Johns Hopkins School of Medicine, 200 N. Wolfe Street, Baltimore 21287, USA.
Holly H VoPediatric Pulmonary, University of Washington School of Medicine, 1900 Ninth Avenue, Seattle 98101, USA.
Nicholas A JabrePediatric Pulmonary, Johns Hopkins All Children's Hospital, 501 Sixth Avenue, St. Petersburg 33701, USA.
Jennifer ShepardPediatrics, Johns Hopkins School of Medicine, 200 N. Wolfe Street, Baltimore 21287, USA.
Amanda MercerPediatric Pulmonary, University of Washington School of Medicine, 1900 Ninth Avenue, Seattle 98101, USA.
Anne McDermottPediatric Pulmonary, University of Washington School of Medicine, 1900 Ninth Avenue, Seattle 98101, USA.
Chisa L LanierPediatric Intensive Care, University of Mississippi Medical Center, 2500 N. State Street, Jackson 39216, USA.
Yuanyuan DingPediatrics, Johns Hopkins School of Medicine, 200 N. Wolfe Street, Baltimore 21287, USA.
Benjamin S WilfondPediatric Pulmonary, University of Washington School of Medicine, 1900 Ninth Avenue, Seattle 98101, USA.
Carrie M HendersonPediatric Intensive Care, University of Mississippi Medical Center, 2500 N. State Street, Jackson 39216, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To pilot feasibility and acceptability of HomeVENT, a systematic approach to family-clinician decision-making about pediatric home ventilation. Methods: Parents and clinicians of children facing home ventilation decisions were enrolled at 3 centers using a pre/post cohort design. Family interventions included: 1) a website describing the experiences of families who previously chose for and against home ventilation 2) a Question Prompt List (QPL); 3) in-depth interviews exploring home life and values. Clinician HomeVENT intervention included a structured team meeting reviewing treatment options in light of the family's home life and values. All participants were interviewed one month after the decision. Results: We enrolled 30 families and 34 clinicians. Most Usual Care (14/15) but fewer Intervention (10/15) families elected for home ventilation. Families reported the website helped them consider different treatment options, the QPL promoted discussion within the family and with the team, and the interview helped them realize how home ventilation might change their daily life. Clinicians reported the team meeting helped clarify prognosis and prioritize treatment options. Conclusions: The HomeVENT pilot was feasible and acceptable. Innovation: This systematic approach to pediatric home ventilation decisions prioritizes family values and is a novel method to increase the rigor of shared decision-making in a rushed clinical environment.

Indexed as

Children with medical complexityDecision-makingHome ventilation

Identifiers

PMID37384158
PMCPMC10294038

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.