ArticleSouth African journal of bioethics and law2023
Towards a data transfer agreement for the South African research community: The empowerment approach.
Article in South African journal of bioethics and law, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The trial behind it
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Who cites it
8 citing papers in PubMed.
- Toward ethical provenance tracking: The GA4GH model data access agreement (DAA).Genetics in medicine : official journal of the American College of Medical Genetics · 2026Article
- Enhancing data governance in collaborative research: Introducing SA DTA 1.1.South African journal of bioethics and law · 2024Article
- The anatomy of a data transfer agreement for health research.Frontiers in pharmacology · 2024Article
- A pathway to strengthening open science: comments on the draftFrontiers in pharmacology · 2024Review
- Cross-border data sharing through the lens of research ethics committee members in sub-Saharan Africa.PloS one · 2024Article
- Editorial: Data governance in African health research: ELSI challenges and solutions.Frontiers in pharmacology · 2024Article
- Forcing a square into a circle: why South Africa's draft revised material transfer agreement is not fit for purpose.Frontiers in pharmacology · 2024Article
- A data management plan for the NESHIE observational study.Frontiers in genetics · 2023Article
Corrections and comments
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Authors and funding
4 authors.
Funding
Abstract
The idea of a data transfer agreement (DTA) template for the South African (SA) research community is receiving increasing attention. While developing such a DTA template is certainly a worthwhile project, questions regarding the project's practical execution should be addressed, including how to best operationalise the envisioned DTA template, and the content of the envisioned DTA template. It is proposed that an empowerment approach be followed in operationalising the envisioned DTA template, which is contrasted with the regulatory approach followed with the material transfer agreement that the Minister of Health promulgated in 2018. While the regulatory approach would entail government making the use of the envisioned DTA template compulsory regardless of the quality of such a template, the empowerment approach, by contrast, entails a focus on developing a high-quality, professionally drafted DTA template for the SA research community and making the use thereof a matter of own choice. Regarding the content of the envisioned DTA template, four hot-button content provisions are analysed, and it is argued that SA research institutions and researchers should be empowered to: (
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.