ArticleCancers2023
Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs.
Article in Cancers, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it, 27 citations in OpenAlex.
- The Current State of Palliative Care Research for Adolescents and Young Adults With Cancer: A Systematic Review and Meta-Thematic Analysis of Empirical Literature.Psycho-oncology · 2025Pooled it
- To understand the experiences, needs, and preferences for supportive care, among children and adolescents (0-19 years) diagnosed with cancer: a systematic review of qualitative studies.Journal of cancer survivorship : research and practice · 2025Pooled it
- Perceived communication barriers with spouses among young adult patients with cancer and their association with psychological distress.Asia-Pacific journal of oncology nursing · 2026Article
- Needs of Rural Caregivers of Patients With Cancer: A Scoping Review of Evidence From North America, Europe, and Australia.Psycho-oncology · 2026Article
- Place of Death Among Early-Onset Colorectal Cancer Decedents in the United States, 1999-2020: National Trends and Disparities.Journal of gastrointestinal cancer · 2026Article
- Family resilience clusters and quality of life in adolescents and young adults with cancer and their caregivers: a dyadic cluster analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Thiamine deficiency observed in family caregivers of AYA cancer patients.Palliative & supportive care · 2026Article
- Relations in young adults with cancer: acknowledging partners and friends as caregivers-a Danish national study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Identifying the informational needs and sources of support of Adolescent and Young Adult (AYA) cancer survivors to inform the development of a digital platform.Journal of cancer survivorship : research and practice · 2026Article
- Psychosocial Support Needs and Utilization of Support Among Survivors of Cancer in Young Adulthood in Switzerland: A Report From the Adolescent and Young Adult (AYA) Psychosocial Health Study.Psycho-oncology · 2026Article
- Experience in the approach to adolescents with cancer in a multidisciplinary unit. Growing together.European journal of pediatrics · 2026Article
- Characterizing open and avoidant communication in parents' caregiving experiences of adolescents and young adults (AYAs) living with blood cancer: Linking communication and psychosocial outcomes.Palliative & supportive care · 2026Article
- Health-Related Quality of Life in Adolescents and Young Adults With an Uncertain or Poor Cancer Prognosis: Quantitative Baseline Results of the CORD-AYA Study.Psycho-oncology · 2025Article
- Assessing the Unmet Social Needs and Financial Hardship of Cancer Caregivers: A Scoping Review.Current oncology reports · 2025Article
- Equipping Change Agents: Applying Mixed Methods to Learn About the Outcomes of the Co-Designed Caregiver-Centered Care Champions Education Program.International journal of environmental research and public health · 2025Article
- Together and Apart: A Gender-Informed Qualitative Analysis of Childhood Brain Tumour and the Parental Relationship.Psycho-oncology · 2025Article
- Preferred and Actual Location of Death in Adolescents and Young Adults With Cancer.JAMA network open · 2025Article
- Cancer advocacy, barriers and associated factors among adolescents and young adults with cancer in Africa.Ecancermedicalscience · 2025Article
- CHAT-S Study Protocol: A randomized controlled trial of a health insurance literacy education program for young adult cancer survivors.Preventive oncology & epidemiology · 2025Article
- Characteristics of adolescent and young adult patients with cancer receiving home-based palliative care: A retrospective study at a single center.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
AYAs with cancer (aged 15 to 39 at primary diagnosis) form a specific group within oncology, and there is limited information on the impact on their informal caregivers. This scoping review aimed to gain insight into the burden on caregivers of AYAs with cancer and identify the unmet needs they might have. Eligible articles focused on impacts in one of the domains of caregiver burden (physical, psychological, social, on schedule, financial) or unmet needs. In all domains of caregiver burden, impact was reported by caregivers. Caregiving leads to physical problems (such as sleep problems) and psychological symptoms (e.g., depression, anxiety, and negative emotions). Loneliness is reported, and little peer-support. Many different tasks and roles must be undertaken, which is perceived as challenging. In addition, there is a financial impact and there are unmet needs to be met. Several domains of the lives of caregivers of AYA cancer patients are negatively affected by the disease. Some of these are age-specific, and tailored to a particular group of caregivers (parents, partners, or friends). AYA cancer patients represent a wide age range, resulting in the engagement of many different caregivers. Future research will need to take this into account in order to adequately provide support.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.