ArticleBMJ open quality2023
Patient engagement in the development and delivery of healthcare services: a systematic scoping review.
Article in BMJ open quality, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
What it found
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The trial behind it
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Who cites it
22 citing papers in PubMed.
- Frameworks for Action: A Scoping Review of Organisational Patient Engagement Models in Healthcare.The International journal of health planning and management · 2026Article
- Collaboration With Clinicians in Inpatient Mental Healthcare: A Qualitative Investigation of Consumer Perspectives.International journal of mental health nursing · 2026Article
- What are the characteristics and impacts of a patient-led conference? A qualitative study.BMJ open · 2026Article
- Making patient experience actionable: applying importance-performance analysis to guide improvements in Swedish healthcare.Frontiers in health services · 2026Article
- Epistemic agency in self-tracking: a conceptual literature review of quantified self as citizen science for health.Frontiers in public health · 2026Review
- Exploring the Journey of Patients Rehabilitated with Removable Complete Dentures: A Constructivist Grounded Theory Study.Journal of patient experience · 2026Article
- Article
- Exploring the Challenges of Context in Accessing Mental Health Support in Rural New Zealand: A Case Study Approach.Journal of advanced nursing · 2025Article
- Developing an evaluation tool for the impact of consumer partnerships in healthcare governance: a coproduced mixed methods study.BMJ open quality · 2025Article
- Results of a patient engagement training for health advisors: a study of self-perceived competency enhancements.Research involvement and engagement · 2025Article
- A qualitative process evaluation of community-based participatory research and human-centered design in the 'Let's talk about vaccines' approach in Mozambique and Malawi.Research involvement and engagement · 2025Article
- Developing a Machine Learning-Based Automated Patient Engagement Estimator for Telehealth: Algorithm Development and Validation Study.JMIR formative research · 2025Article
- Examining impact of service user involvement: a follow-up study of user-led mental health service evaluation.Frontiers in psychiatry · 2025Article
- Investigating the Best Practices for Engagement in Remote Participatory Design: Mixed Methods Analysis of 4 Remote Studies With Family Caregivers.Journal of medical Internet research · 2024Article
- The Symphony of Consumer Partnering and Clinical Governance: An Organizational Review Using the RE-AIM Framework.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Global kidney health priorities-perspectives from the ISN-GKHA.Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association · 2024Review
- Partnering with Consumers - Why would I do it? What is it? How do I do it?Journal of medical radiation sciences · 2024Article
- Rationalizing the Influence of Co-Design on Distress, Clinical Decision-Making and Disease Self-Management of Cancer Patients-as-Partners: A Quasi-Experimental Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Current and Future Challenges for Rehabilitation for Inflammatory Arthritis.Journal of clinical medicine · 2024Review
- Patient Involvement in the Rehabilitation Process Is Associated with Improvement in Function and Goal Attainment: Results from an Explorative Longitudinal Study.Journal of clinical medicine · 2024Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient engagement (PE) is required to improve future healthcare services. PE in the development and delivery of healthcare services is likely to be complex but is scarcely described.
objectivesThe objective of this scoping review was to summarise primary studies on mesolevel PE regarding structure, process and outcomes. More specifically, the aim was to explore barriers and facilitators to successful PE, how persons are engaged in the process and summarise reported consequences.
methodA systematic scoping review was conducted, searching the MEDLINE, EMBASE, Cochrane and PsycINFO databases. Primary studies, published between 7 July 2005 and 4 October 2022, were considered for inclusion. Two reviewers extracted data about PE (eg, attributes of PE settings, facilitators and barriers, and outcomes to PE) and the first author coded the extracted data into structural, processual and outcome themes.
resultsOf 8588 identified records, 37 studies were eligible. Most of the included studies were conducted in Europe (n=19; 51%) and North America (n=13; 35%). Structures that ensure sufficient stakeholder representativeness and PE knowledge through education may facilitate the PE process further, regardless of the environmental setting. Interpersonal relationships with uneven power dynamics were reported as noteworthy processual barriers to meaningful PE, while clearly described roles and tasks were reported as important facilitators. In contrast to hard outcomes with operationalised PE effects, the most noteworthy outcomes of PE were reported as soft processual consequences such as patient representatives improving their self-esteem and feeling valued.
conclusionsUnfortunately, there is a dearth of studies exploring hard and operationalised PE outcomes on healthcare services and patients receiving healthcare. The PE process may be facilitated by dedicated finances to PE education and by ensuring sufficient stakeholder representativeness.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.