Evidence map›Paper›PMID 37367211›Full record

ReviewInternational journal of neonatal screening2023

The Psychosocial Impact of Congenital Cytomegalovirus on Caregivers and Families: Lived Experiences and Review of the Literature.

Michelle P Zappas, Amanda Devereaux, Megan H Pesch

Open access · goldAbstract readReview
In one paragraph

Review in International journal of neonatal screening, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
3.2field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed, 15 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors at 3 institutions in 1 country.

Michelle P ZappasDepartment of Nursing, Suzanne Dworak-Peck School of Social Work, University of Southern California, Los Angeles, CA 90015, USA.ORCID 0000-0001-5199-033X
Amanda DevereauxNational CMV Foundation, Tampa, FL 33606, USA.ORCID 0009-0001-1305-8514
Megan H PeschNational CMV Foundation, Tampa, FL 33606, USA.ORCID 0000-0002-8212-2241
National CMV Foundation · USUniversity of Michigan · USUniversity of Southern California · US

Funding

Congenital cytomegalovirus: Infant developmental trajectories and parent experiencesK23HD108278 · NICHD · UNIVERSITY OF MICHIGAN AT ANN ARBOR · PI PESCH, MEGAN H. · 2022 to 2025
$678k
NICHD NIH HHS K23 HD108278
6 · The paper itself

Abstract

Caring for a child with congenital cytomegalovirus (cCMV) can be costly for families, not only in terms of out-of-pocket expenses, but also in terms of caregiver time, relationships, career trajectories, and mental health. These additional burdens are sometimes referred to as "spillover effects". As parents of children with cCMV, we, the authors of this article, discuss the impact that cCMV has had on our families. While multiple studies have reported on the epidemiology, prevention, screening, diagnosis, and management of cCMV, there has been minimal research regarding the possible impact on the family unit. In this narrative review, we discuss the various areas of the lives of families and caregivers that may be impacted by raising a child with cCMV. Whether children are minimally or severely affected by the sequelae of cCMV, they and their families merit the progression of awareness of the virus and governmental policies to help end cCMV. As the existing cCMV-specific literature is limited, we correlate studies of other childhood disabilities and find the mutuality experienced by families affected by cCMV.

Indexed as

burden of diseasecaregivercongenital cytomegalovirusfamilyindirect costsspillover effects

Identifiers

PMID37367211
PMCPMC10299480
OpenAlexW4378473729

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.