ArticleJournal of health psychology2023
A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life.
Article in Journal of health psychology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed, 13 citations in OpenAlex.
- Faith, Culture, and Cancer: A Qualitative Study Exploring Muslim Women's Perspectives on Clinical Trials in the United Kingdom.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Knowledge, Attitudes, Practices, and Illness Perception of Female Outpatients With Chronic Pelvic Pain.Pain research & management · 2026Article
- The Role of Catastrophizing in Enhancing Pain Interference and Depressive Symptoms in Endometriosis: A Longitudinal Examination.European journal of pain (London, England) · 2026Article
- Illness perceptions among individuals with endometriosis and their longitudinal associations with psychological distress and pain.Journal of health psychology · 2025Article
- Experiences of disempowerment amongst endometriosis patients: Toward comprehensive care to address the psychosocial impact of chronic illness.Journal of health psychology · 2025Article
- Utilising the COM-B model to interpret barriers and facilitators to cervical cancer screening in young women.Journal of health psychology · 2025Article
- A Template Thematic Analysis of Self-Concept and Self-Compassion in People Living With Endometriosis: Analysis of Qualitative Survey Responses.Journal of advanced nursing · 2025Article
- Quality of Life in Women with Endometriosis: The Importance of Socio-Demographic, Diagnostic-Therapeutic, and Psychological Factors.Journal of clinical medicine · 2025Article
- Queens of hearts: Exploring the lived experiences of mothers caring for infants with complex congenital heart disease in Sri Lanka.Journal of health psychology · 2024Article
- Endometriosis in Transgender Men: Bridging Gaps in Research and Care-A Narrative Review.Biomedicines · 2024Review
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Endometriosis is related to adverse quality of life (QoL) and wellbeing outcomes. The way in which endometriosis is perceived by individuals experiencing the condition has not been directly considered, yet illness perceptions (IPs) are predictors of QoL in several chronic conditions. This research aims to gain an understanding of the IPs held by individuals experiencing endometriosis and their impact on QoL. Semi-structured, one-to-one interviews with 30 UK-based participants sought to gain an understanding of participant experiences and perceptions linked to endometriosis. Three themes were constructed through reflexive thematic analysis: a life disrupted; lost sense of self; and complex emotional responses. Largely negative IPs were held by individuals experiencing endometriosis which, along with endometriosis-specific symptoms, fuelled fears for the future and reduced QoL. IP-based interventions may support the QoL of those experiencing endometriosis whilst effective treatment is sought.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.