Evidence map›Paper›PMID 37354232›Full record

ArticleIntensive care medicine2023

Giving a voice to patients at high risk of dying in the intensive care unit: a multiple source approach.

Nancy Kentish-Barnes, Anne-Laure Poujol, Emilie Banse, Victoire Deltour, Cyril Goulenok, Charlotte Garret, Anne Renault, Virginie Souppart, Anne Renet, Alain Cariou and 8 more

Abstract readMulticenter Study
PubMed Publisher
In one paragraph

Article in Intensive care medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Guideline
  2. Article
  3. Article
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Nancy Kentish-BarnesFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France. nancy.kentish@aphp.fr.ORCID 0000-0003-0024-0429
Anne-Laure PoujolFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.
Emilie BanseFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.
Victoire DeltourVCR-School of Psychologist Practitioners, Paris, France.
Cyril GoulenokIntensive Care Unit, Ramsay Générale de Santé, Jacques Cartier Private Hospital, Massy, France.
Charlotte GarretMedical Intensive Care, Hôtel Dieu University Hospital, Nantes, France.
Anne RenaultMedical Intensive Care, Cavale Blanche University Hospital, Brest, France.
Virginie SouppartFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.
Anne RenetFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.
Alain CariouMedical Intensive Care, AP-HP, Cochin Hospital, Paris, France.
Diane FriedmanIntensive Care Unit, AP-HP, Raymond Poincaré Hospital, Garches, France.
Ludivine Chalumeau-LemoineIntensive Care Unit, Ramsay Générale de Santé, Claude Galien Private Hospital, Quincy Sous Sénart, France.
Olivier GuissetMedical Intensive Care, Saint André University Hospital, Bordeaux, France.
Sybille MerceronMedical Intensive Care, André Mignot Hospital, Le Chesnay, France.
Antoine MonselDepartment of Anesthesiology and Critical Care, Multidisciplinary Intensive Care Unit, AP-HP, La Pitié-Salpétrière Hospital, Paris, France.
Olivier LesieurMedical and Surgical Intensive Care, La Rochelle Hospital, La Rochelle, France.
Frédéric PochardFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.
Elie AzoulayFamiréa Research Group, Medical Intensive Care, AP-HP, Saint Louis Hospital, 1 Avenue Claude Vellefaux, 75010, Paris, France.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeData are scarce regarding the experience of critically ill patients at high risk of death. Identifying their concerns could allow clinicians to better meet their needs and align their end-of-life trajectory with their preferences and values. We aimed to identify concerns expressed by conscious patients at high risk of dying in the intensive care unit (ICU).

methodsMultiple source multicentre study. Concerns expressed by patients were collected from five different sources (literature review, panel of 50 ICU experts, prospective study in 11 ICUs, in-depth interviews with 17 families and 15 patients). All qualitative data collected were analyzed using thematic content analysis.

resultsThe five sources produced 1307 concerns that were divided into 7 domains and 41 sub-domains. After removing redundant items and duplicates, and combining and reformulating similar items, 28 concerns were extracted from the analysis of the data. To increase accuracy, they were merged and consolidated, and resulted in a final list of 15 concerns pertaining to seven domains: concerns about loved-ones; symptom management and care (including team competence, goals of care discussions); spiritual, religious, and existential preoccupations (including regrets, meaning, hope and trust); being oneself (including fear of isolation and of being a burden, absence of hope, and personhood); the need for comforting experiences and pleasure; dying and death (covering emotional and practical concerns); and after death preoccupations.

conclusionThis list of 15 concerns may prove valuable for clinicians as a tool for improving communication and support to better meet the needs of patients at high risk of dying.

Indexed as

Terminal CareHumansIntensive Care UnitsPalliative CarePatientsProspective StudiesConcernsDying patientsExperienceQualitative study

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.