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ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2023

Exploring pain among young people who have completed treatment for acute lymphoblastic leukemia: experiences of youth and caregivers.

Sara Cho, Amanda Wurz, Brianna Henry, Andrew Tran, Jenny Duong, Melanie Noel, Alexandra Neville, Michaela Patton, Brooke Russell, Jennifer Giles and 2 more

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

12 authors.

Sara ChoDepartment of Oncology, Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Amanda WurzSchool of Kinesiology, University of the Fraser Valley, Fraser Valley, BC, Canada.
Brianna HenryDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Andrew TranDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Jenny DuongDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Melanie NoelDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Alexandra NevilleDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Michaela PattonDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Brooke RussellDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Jennifer GilesAlberta Children's Hospital, Haematology, Oncology, and Transplant Program, Calgary, AB, Canada.
Kathleen ReynoldsAlberta Children's Hospital, Haematology, Oncology, and Transplant Program, Calgary, AB, Canada.
Fiona SchulteDepartment of Oncology, Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada. fsmschul@ucalgary.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeAcute lymphoblastic leukemia (ALL) is the most common cancer diagnosed among individuals <14 years of age. The disease and its treatments are associated with negative side effects, including pain, which is both prevalent and distressing. Little is known about pain experiences in this population, which has slowed efforts to identify strategies to mitigate and cope with this adverse effect. This study sought to explore youth's and their caregiver's experiences with, and perspectives of, pain in the context of pediatric cancer treatment.

methodsYouth and one of their caregivers were recruited through (omitted for peer review). Following completion of a demographic survey, youth and one of their caregivers were interviewed separately using a semi-structured, one-on-one interview guide. Demographic information was analyzed with descriptive statistics, and interviews were transcribed verbatim and analyzed using reflexive thematic analysis.

resultsYouth (n = 19; M

conclusionsFindings extend prior work, suggesting that pain is common, distressing, multidimensional, and influenced by social context. Results highlight the number of ways in which youth and their caregivers attempt to manage their pain and factors influencing pain experiences. Greater efforts are needed to address pain during cancer treatment and survivorship.

Indexed as

CaregiversPrecursor Cell Lymphoblastic Leukemia-LymphomaAdolescentChildHumansMiddle AgedPainQualitative ResearchSocial EnvironmentChildhood cancerPainPsychosocial oncologySurvivorship

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.