Evidence map›Paper›PMID 37354084›Full record

ArticleDementia (London, England)2023

Practitioners' ability to remotely develop understanding for personalised care and support planning: a thematic analysis of multiple data sources from the feasibility phase of the Dementia Personalised Care Team (D-PACT) intervention.

Hannah Wheat, Sarah Griffiths, Alex Gude, Lauren Weston, Cath Quinn, Sarah Morgan-Trimmer, Tomasina M Oh, Crispin Musicha, Leanne Greene, Mike Clark and 2 more

Open access · hybridAbstract read
In one paragraph

Article in Dementia (London, England), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.9field-weighted citation impact, top 27% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors at 5 institutions in 2 countries.

Hannah WheatCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0003-3211-6254
Sarah GriffithsCentre for Ageing Population Studies, Research Department of Primary Care and Population Health, University College London, London, UK.ORCID 0000-0002-2652-3163
Alex GudeCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0002-8575-8819
Lauren WestonCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0001-8735-2292
Cath QuinnCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0003-4644-4603
Sarah Morgan-TrimmerDepartment of Health and Community Sciences, Faculty of Health and Life Sciences, University of Exeter, Exeter, UK.ORCID 0000-0001-5226-9595
Tomasina M OhCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0003-4662-3193
Crispin MusichaMedical Statistics, Faculty of Health, University of Plymouth, Plymouth, UK.ORCID 0000-0003-0482-3218
Leanne GreeneDepartment of Rehabilitation, Aged and Extended Care, Flinders University, Adelaide, SA, Australia.ORCID 0000-0002-5383-4362
Mike ClarkCare Policy and Evaluation Centre, London School of Economics and Political Science, London, UK.ORCID 0000-0003-4964-5005
Sarah Rybczynska-BuntCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0002-4284-1081
Richard ByngCommunity and Primary Care Research Group, University of Plymouth, Plymouth, UK.ORCID 0000-0001-7411-9467
University of Plymouth · GBFlinders University · AULondon School of Economics and Political Science · GBUniversity College London · GBUniversity of Exeter · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Practitioner understanding of patients' preferences, wishes and needs is essential for personalised health care i.e., focusing on 'what matters' to people based on their individual life situation. To develop such an understanding, dementia practitioners need to use communication practices that help people share their experiences, preferences, and priorities. Following the COVID-19 pandemic, dementia support is likely to continue to be delivered both remotely and in-person. This study analysed multiple sources of qualitative data to examine the views of practitioners, people living with dementia and carers, and researchers on how an understanding of what matters to people living with dementia can be developed remotely via telephone and video call. Access to environmental stimuli, the remote use of visual tools, peoples' tendency to downplay or omit details about their troubles and carers' ability to disclose privately were interpreted, through thematic analysis, to be factors affecting how practitioners sought to develop understanding remotely. Cumulatively, findings show that while remote support created unique challenges to practitioners' ability to develop understanding for personalised care, practitioners developed adaptive strategies to overcome some of these challenges. Further research should examine how, when and for whom these adapted practices for remote personalised care work, informing the development of evidence-based guidance and training on how practitioners can remotely develop the understanding required for personalised care.

Indexed as

COVID-19DementiaCaregiversFeasibility StudiesHumansInformation SourcesPandemicsPatient Care Teamcommunicationdementiapersonalised care and supportremote interactionthematic analysis

Identifiers

PMID37354084
PMCPMC10521162
OpenAlexW4381888135

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.