Observational studyAlzheimer's & dementia : the journal of the Alzheimer's Association2023
Use of the patient portal among older adults with diagnosed dementia and their care partners.
Observational study in Alzheimer's & dementia : the journal of the Alzheimer's Association, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed.
- Patient Portal Activation Disparities by Ward, Census Tract, and Zip Code in an Urban Landscape Among Neurology Patients: Cross-Sectional Multi-Scale Analysis.Journal of medical Internet research · 2026Article
- Few Caregivers of Older Adults With Dementia Have Shared Access to Their Care Recipients' Electronic Health Record Portal.Journal of the American Geriatrics Society · 2026Article
- A Secure User Interface for Preclinical Evaluation of AI in Patient Portal Message Management: Tutorial.JMIR medical informatics · 2026Article
- Documented follow-up to memory concerns reported at the Medicare Annual Wellness Visit.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- A scoping review of studies on secure messaging through patient portals: persistent challenges and potential solutions.npj health systems · 2026Article
- Identifying Patient Portal Messages from Care Partners of People with Dementia.Clinical interventions in aging · 2026Article
- Systematic Identification of Caregivers of Patients Living With Dementia in the Electronic Health Record: Known Contacts and Natural Language Processing Cohort Study.Journal of medical Internet research · 2025Article
- Feasibility and Acceptability of Engaging Care Partners of Persons Living With Dementia With Electronic Outreach for Deprescribing.The Gerontologist · 2025Article
- Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study.JMIR aging · 2025Article
- A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.JAMA network open · 2025Article
- Atrial Fibrillation as a Geriatric Syndrome: Why Are Frailty and Disability Often Confused? A Geriatric Perspective from the New Guidelines.International journal of environmental research and public health · 2025Article
- Care Partner Perspectives on the Use of a Patient Portal Intervention to Promote Care Partner Identification in Dementia Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Improving How Caregivers of People Living With Dementia Are Identified in the Electronic Health Record: Qualitative Study and Exploratory Chart Review.JMIR aging · 2024Article
- Documentation of hearing difficulty by providers amidst cognitive concerns: A study of the Medicare Annual Wellness Visit.Journal of the American Geriatrics Society · 2024Article
- Embedding Authorship Identity into a Portal-Based Agenda Setting Intervention to Support Older Adults and Care Partners.Journal of general internal medicine · 2024Article
- Use of the Patient Portal to Discuss Medications Among People with Dementia and Their Care Partners.Journal of general internal medicine · 2024Article
- The Medicare annual wellness visit: An opportunity to improve health system identification of hearing loss?Journal of the American Geriatrics Society · 2024Article
- Shared Access to Adults' Patient Portals: A Secret Shopper Exercise.Applied clinical informatics · 2024Article
- Patient portal messages to support an age-friendly health system for persons with dementia.Journal of the American Geriatrics Society · 2024Observational
- Care Partner Engagement in Secure Messaging Between Patients With Diabetes and Their Clinicians: Cohort Study.JMIR diabetes · 2024Article
Corrections and comments
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Authors and funding
10 authors.
Funding
Abstract
introductionCare partners are at the forefront of dementia care, yet little is known about patient portal use in the context of dementia diagnosis.
methodsWe conducted an observational cohort study of date/time-stamped patient portal use for a 5-year period (October 3, 2017-October 2, 2022) at an academic health system. The cohort consisted of 3170 patients ages 65+ with diagnosed dementia with 2+ visits within 24 months. Message authorship was determined by manual review of 970 threads involving 3065 messages for 279 patients.
resultsMost (71.20%) older adults with diagnosed dementia were registered portal users but far fewer (10.41%) had a registered care partner with shared access. Care partners authored most (612/970, 63.09%) message threads, overwhelmingly using patient identity credentials (271/279, 97.13%). DISCUSSION: The patient portal is used by persons with dementia and their care partners. Organizational efforts that facilitate shared access may benefit the support of persons with dementia and their care partners. Highlights Patient portal registration and use has been increasing among persons with diagnosed dementia. Two thirds of secure messages from portal accounts of patients with diagnosed dementia were identified as being authored by care partners, primarily using patient login credentials. Care partners who accessed the patient portal using their own identity credentials through shared access demonstrate similar levels of activity to patients without dementia. Organizational initiatives should recognize and support the needs of persons with dementia and their care partners by encouraging awareness, registration, and use of proper identity credentials, including shared, or proxy, portal access.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.