ArticleThe clinical respiratory journal2023
"It's like a forgotten issue sometimes …": Qualitative study of individuals living and caring for people with chronic breathlessness.
Article in The clinical respiratory journal, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it, 8 citations in OpenAlex.
- Prevalence and correlates of breathlessness in adults: an umbrella review and updated systematic review with meta-analysis in general and clinical populations.European respiratory review : an official journal of the European Respiratory Society · 2025Pooled it
- Co-designing a primary care delivered, breathlessness, self-management intervention for people with chronic respiratory disease.NPJ primary care respiratory medicine · 2026Article
- Article
- Diminishing activities of daily living as severity of chronic breathlessness worsens: a national, cross-sectional survey.BMJ open respiratory research · 2025Article
- Experiences and management of breathing and shortness of breath in patients with chronic heart failure - a qualitative study.BMC cardiovascular disorders · 2025Article
- "It's like a forgotten issue sometimes …": Qualitative study of individuals living and caring for people with chronic breathlessness.The clinical respiratory journal · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
introductionThis study aims to explore the perspectives of patients and carers with chronic breathlessness on current provision of care, care expectations, and self-management needs to develop relevant health services and resources to improve clinical outcomes.
methodsIn-depth semistructured interviews were conducted on patients living with chronic breathlessness and carers.
resultsThirteen patients (cardiac, respiratory, and noncardiorespiratory) and two carers were interviewed (mean age 57 years, 47% female, median duration with breathlessness 5 years). Four main themes were identified: (1) living with breathlessness, (2) diagnosis delays, misdiagnosis, and knowledge gaps, (3) beyond curing disease: symptom relief and improving quality of life, and (4) self-management and limited support for it.
conclusionBreathlessness has a high personal impact but remains a neglected condition in Australia. Patients suffer from lack of personal, community, and provider awareness, discontinuity of care, and too few clinical and self-management options.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.