Evidence map›Paper›PMID 37346994›Full record

ArticleAutism in adulthood2023

The Gender-Diversity and Autism Questionnaire: A Community-Developed Clinical, Research, and Self-Advocacy Tool for Autistic Transgender and Gender-Diverse Young Adults.

John F Strang, Lucy S McClellan, Daphne Raaijmakers, Reid Caplan, Sascha E Klomp, Mindy Reutter, Meng-Chuan Lai, Minneh Song, Finn V Gratton, Laura K Dale and 27 more

Open access · greenAbstract read
In one paragraph

Article in Autism in adulthood, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
2.1field-weighted citation impact, top 13% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Article
  5. Article
  6. Research methods at the intersection of gender diversity and autism: A scoping review.Autism : the international journal of research and practice · 2024
    Article
  7. Article
  8. Review
  9. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

37 authors at 20 institutions in 6 countries.

John F StrangGender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.ORCID https://orcid.org/0000-0002-0950-6177
Lucy S McClellanGender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.
Daphne RaaijmakersDepartment of Medical Psychology, Center of Expertise on Gender Dysphoria, Amsterdam University Medical Centers, Location Vrije Universiteit, Amsterdam, The Netherlands.
Reid CaplanBrandeis University, Waltham, Massachusetts, USA.
Sascha E KlompPrivate Consultant, Utrecht, The Netherlands.
Mindy ReutterDepartment of Social and Behavioral Sciences, Yale School of Public Health, New Haven, Connecticut, USA.
Meng-Chuan LaiChild and Youth Mental Health Collaborative at the Centre for Addiction and Mental Health, The Hospital for Sick Children, and Department of Psychiatry, Temerty Faculty of Medicine, University of Toronto, Toronto, Canada.
Minneh SongGender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.
Finn V GrattonPrivate Consultant, Santa Cruz, California, USA.
Laura K DalePrivate Consultant, London, United Kingdom.
Anouschka SchutteLinguistic Consultant, Eindhoven, The Netherlands.
Annelou L C de VriesDepartment of Child and Adolescent Psychiatry, Center of Expertise on Gender Dysphoria, Amsterdam University Medical Centers, Location Vrije Universiteit, Amsterdam, The Netherlands.
Finn GardinerAutistic People of Color Fund, Lincoln, Nebraska, USA.
Laura Edwards-LeeperSchool of Professional Psychology, Pacific University, Hillsboro, Oregon, USA.
Amélie Lune MinnaardPrivate Consultant, Leiden, The Netherlands.
Niki Lou EleveldPrivate Consultant, Nieuwegein, The Netherlands.
Endever Corbin#AutChat, Portland, Oregon, USA.
Yenn PurkisPrivate Consultant, Canberra, Australia.
Wenn LawsonDepartment of Disability, Inclusion and Special Needs, University of Birmingham, Edgbaston, Birmingham, United Kingdom.
Da-Young KimBrown University, Providence, Rhode Island, USA.
Isa M van WieringenDepartment of Medical Psychology, Center of Expertise on Gender Dysphoria, Amsterdam University Medical Centers, Location Vrije Universiteit, Amsterdam, The Netherlands.
Victoria M Rodríguez-RoldánGLSEN, New York, New York, USA.
Marvel C HarrisPrivate Consultant, Hilversum, The Netherlands.
Madeline F WilksPrivate Consultant, Bethesda, Maryland, USA.
Gee AbrahamPrivate Consultant, Eugene, Oregon, USA.
Anouk Balleur-van RijnParnassia Psychiatric Institute, The Hague, The Netherlands.
Lydia X Z BrownDisability Studies Program, Georgetown University, Washington, District of Columbia, USA.
Alexandra ForshawFlow Observatorium, Portsmouth, United Kingdom.
Gary B WilksPrivate Consultant, Bethesda, Maryland, USA.
April Dawn GriffinPrivate Consultant, Arborfield, Canada.
Elizabeth K GrahamThe Arc of the United States National Council of Self Advocates, Washington, District of Columbia, USA.
Sandy KrauseWisconsin Autism Empowerment, Milwaukee, Wisconsin, USA.
Noor PervezAutistic Self-Advocacy Network, Washington, District of Columbia, USA.
Inge A BokPrivate Consultant, Amsterdam, The Netherlands.
Amber SongGender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.
Abigail L FischbachGender and Autism Program, Center for Neuroscience, Children's National Hospital, Washington, District of Columbia, USA.
Anna I R van der MiesenDepartment of Child and Adolescent Psychiatry, Center of Expertise on Gender Dysphoria, Amsterdam University Medical Centers, Location Vrije Universiteit, Amsterdam, The Netherlands.
Amsterdam University Medical Centers · NLCenter for Autism and Related Disorders · USCambridge Information Group · USAmsterdam University of Applied Sciences · NLArc of the United States · USBamfield Marine Sciences Centre · CABrandeis University · USBrown University · USCentre for Addiction and Mental Health · CACurtin University · AUEindhoven University of Technology · NLEmpowerment Program · USGeorgetown University · USGeorge Washington University · USHilverZorg · NLLeiden University · NLMater Private Hospital · AUNieuwegein Fonds · NLPacific University Oregon · USParnassia Groep · NL

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Autistic transgender people face unique risks in society, including inequities in accessing needed care and related mental health disparities. Given the need for specific and culturally responsive accommodations/supports, the characterization of key experiences, challenges, needs, and resilience factors within this population is imperative. This study developed a structured self-report tool for autistic transgender young adults to communicate their experiences and needs in a report format attuned to common autistic thinking and communication styles. Methods: This cross-nation project developed and refined the Gender-Diversity and Autism Questionnaire through an iterative community-based approach using Delphi panel methodology. This proof-of-principle project defined "expertise" broadly, employing a multi-input expert search approach to balance academic-, community-, and lived experience-based expertise. Results: The expert collaborators ( Conclusions: This study employed a multipronged multimodal search approach to maximize equity in representation of the expert measure development team. The resulting instrument, designed for clinical, research, and self-advocacy applications, has parallel Dutch and English versions and is available for immediate use. Future cross-cultural research with this instrument could help identify contextual risk and resilience factors to better understand and address inequities faced by this large intersectional population.

Indexed as

adultautismautisticgender diversenonbinarytransgender

Identifiers

PMID37346994
PMCPMC10280183
OpenAlexW4380608077

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.