Evidence map›Paper›PMID 37340209›Full record

ArticleJournal of cancer survivorship : research and practice2024

Making sense of the cancer journey: Pediatric cancer survivors' and their parents' autobiographical memories.

Sara Cho, Amanda Wurz, Brianna Henry, Andrew Tran, Jenny Duong, Melanie Noel, Alex Neville, Michaela Patton, K Brooke Russell, Jennifer Giles and 2 more

Abstract read
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In one paragraph

Article in Journal of cancer survivorship : research and practice, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Neutrophil-to-lymphocyte ratio is associated with accelerometer-measured physical activity levels in breast cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Sara ChoDepartment of Oncology, Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Amanda WurzSchool of Kinesiology, University of the Fraser Valley, Fraser Valley, BC, Canada.
Brianna HenryDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Andrew TranDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Jenny DuongDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Melanie NoelDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Alex NevilleDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Michaela PattonDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
K Brooke RussellDepartment of Psychology, University of Calgary, Calgary, AB, Canada.
Jennifer GilesAlberta Children's Hospital, Haematology, Oncology, and Transplant Program, Calgary, AB, Canada.
Kathy ReynoldsAlberta Children's Hospital, Haematology, Oncology, and Transplant Program, Calgary, AB, Canada.
Fiona SchulteDepartment of Oncology, Division of Psychosocial Oncology, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada. fsmschul@ucalgary.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeYouth diagnosed with acute lymphoblastic leukemia (ALL) and their caregiver's experience a myriad of challenges in all domains of health that extend beyond treatment. Yet, little is known about how the cancer experience, and recollections associated with the experience, impact survivorship. We explored pediatric ALL survivors' and their caregivers' autobiographical memories of the cancer experience from diagnosis onwards.

methodsSurvivors of ALL, and one of their caregivers, were recruited through a local clinic. Survivors and their caregivers completed a demographic survey and semi-structured, private, one-on-one interviews. Demographic information were analyzed using descriptive statistics. Interviews were transcribed verbatim and analyzed using reflexive thematic analysis at the level of the individual and dyad.

resultsInsights from survivors (N = 19; M

conclusionsFindings highlight the varied and long-lasting ways cancer impacts survivors of pediatric ALL and their caregivers. Survivors had difficultly remembering their experience or felt that information was withheld and were acutely aware of their caregiver's distress. Caregivers were cautious and intentionally limited the information they shared. IMPLICATIONS FOR CANCER SURVIVORS: Survivors desired to be included within, or told about, decisions related to their healthcare and were acutely aware of their caregiver's distress. Efforts should be made to communicate with survivors (from diagnosis onward) openly and to consider strategies to minimize the short- and long-term impacts of pediatric ALL among survivors and their caregivers.

Indexed as

Cancer SurvivorsMemory, EpisodicNeoplasmsAdolescentCaregiversChildHumansMiddle AgedParentsSurvivorsCaregiversChildhood cancerQualitativeSurvivorship

Identifiers

PMID37340209

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.