Evidence map›Paper›PMID 37340132›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2023

Health-related quality of life profiles in adolescents and young adults with chronic conditions.

Suwei Wang, Cara J Arizmendi, Dan V Blalock, Dandan Chen, Li Lin, David Thissen, I-Chan Huang, Darren A DeWalt, Bryce B Reeve

Open access · greenAbstract read
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Article
  3. Article
  4. Health-related quality of life profiles of adults with arthritis and/or fibromyalgia: a cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 3 institutions in 1 country.

Suwei WangCenter for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, 215 Morris Street; Suite 230, DUMC 104023, Durham, NC, 27701, USA.
Cara J ArizmendiCenter for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, 215 Morris Street; Suite 230, DUMC 104023, Durham, NC, 27701, USA.
Dan V BlalockDepartment of Psychiatry and Behavioral Sciences, Duke University School of Medicine, Durham, NC, USA.
Dandan ChenCenter for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, 215 Morris Street; Suite 230, DUMC 104023, Durham, NC, 27701, USA.
Li LinCenter for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, 215 Morris Street; Suite 230, DUMC 104023, Durham, NC, 27701, USA.
David ThissenDepartment of Psychology and Neuroscience, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
I-Chan HuangDepartment of Epidemiology and Cancer Control, St. Jude Children's Research Hospital, Memphis, TN, USA.
Darren A DeWaltDepartment of Medicine, University of North Carolina at Chapel Hill, School of Medicine, Chapel Hill, NC, USA.
Bryce B ReeveCenter for Health Measurement, Department of Population Health Sciences, Duke University School of Medicine, 215 Morris Street; Suite 230, DUMC 104023, Durham, NC, 27701, USA. bryce.reeve@duke.edu.ORCID http://orcid.org/0000-0002-6709-8714
Duke University · USUniversity of North Carolina at Chapel Hill · USSt. Jude Children's Research Hospital · US

Funding

PROMIS Pediatrics: Longitudinal Validation and Linking Pediatric and Adult Item BU01AR052181 · NIAMS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI REEVE, BRYCE B · 2004 to 2013
$9.1M
HSRD VA IK2 HX003085NIAMS NIH HHS U01 AR052181NIH HHS U01AR052181
6 · The paper itself

Abstract

purposeTo assess health-related quality of life (HRQOL) among adolescents and young adults (AYAs) with chronic conditions.

methodsAYAs (N = 872) aged 14-20 years completed NIH's Patient-Reported Outcomes Measurement Information System

resultsA 4-profile LPA model was selected. A total of 161 (18.5%), 256 (29.4%), 364 (41.7%), and 91 (10.4%) AYAs were classified into Minimal, Mild, Moderate, and Severe HRQOL Impact profiles. AYAs in each profile had distinctive mean scores with over a half standard deviation (5-points in PROMIS T-scores) of difference between profiles across most HRQOL domains. AYAs who were female or had conditions such as mental health condition, hypertension, and self-reported chronic pain were more likely to be in the Severe HRQOL Impact profile. The Huberty's I index was 0.36.

conclusionsApproximately half of AYAs with a chronic condition experience moderate to severe HRQOL impact. The availability of risk prediction models for HRQOL impact will help to identify AYAs who are in greatest need of closer clinical care follow-up.

Indexed as

Chronic PainQuality of LifeAdolescentAnxietyChronic DiseaseFemaleHumansMaleSelf ReportYoung AdultAYAChronic conditionsHRQOLLPAPROMIS

Identifiers

PMID37340132
PMCPMC11264194
OpenAlexW4381328306

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.