Evidence map›Paper›PMID 37329124›Full record

ArticleClinical nursing research2023

Decisional Regret in Long-Term Australian Allogeneic Hematopoietic Stem Cell Transplantation Survivors: A Cross-Sectional Survey.

Gemma McErlean, Caley Tapp, Lisa Brice, Anisha Pradhan, Nicole Gilroy, Masura Kabir, Matt Greenwood, Stephen R Larsen, John Moore, David Gottlieb and 6 more

Open access · hybridAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Clinical nursing research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
2.3field-weighted citation impact, top 12% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 4 citations in OpenAlex.

  1. Improved Patient-Reported Outcomes With Post-Transplant Cyclophosphamide: A Quality-of-Life Evaluation and 2-Year Outcomes of BMT CTN 1703.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2025
    Trial
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors at 10 institutions in 1 country.

Gemma McErleanUniversity of Wollongong, Sydney, NSW, Australia.ORCID 0000-0001-6496-5678
Caley TappUniversity of Queensland, Herston, Australia.ORCID 0000-0002-2731-7345
Lisa BriceRoyal North Shore Hospital, Sydney, NSW, Australia.
Anisha PradhanUniversity of Wollongong, Sydney, NSW, Australia.
Nicole GilroyNew South Wales Agency for Clinical Innovation, Sydney, Australia.
Masura KabirWestmead Breast Cancer Institute, Sydney, NSW, Australia.
Matt GreenwoodRoyal North Shore Hospital, Sydney, NSW, Australia.
Stephen R LarsenRoyal Prince Alfred Hospital, Sydney, NSW, Australia.
John MooreSt Vincents Hospital, Sydney, NSW, Australia.
David GottliebWestmead Hospital, Sydney, NSW, Australia.
Mark HertzbergPrince of Wales Hospital, Randwick, NSW, Australia.
Louisa BrownCalvary Mater Hospital, Newcastle, NSW, Australia.
Megan HoggWestmead Hospital, Sydney, NSW, Australia.
Gillian HuangWestmead Hospital, Sydney, NSW, Australia.
Christopher WardRoyal North Shore Hospital, Sydney, NSW, Australia.
Ian KerridgeRoyal North Shore Hospital, Sydney, NSW, Australia.
The University of Sydney · AUWestmead Hospital · AUUniversity of Wollongong · AUCalvary Mater Newcastle Hospital · AUCancer Institute of New South Wales · AUPrince of Wales Hospital · AURoyal North Shore Hospital · AURoyal Prince Alfred Hospital · AUSt Vincent's Hospital Sydney · AUThe University of Queensland · AU

Funding

Gender Differences in Responses to Caffeine in Children and AdolescentsR01DA030386 · NIDA · STATE UNIVERSITY OF NEW YORK AT BUFFALO · PI TEMPLE, JENNIFER L · 2011 to 2015
$1.7M
NIDA NIH HHS R01 DA030386
6 · The paper itself

Abstract

Allogeneic hematopoietic stem cell transplantation (allo-HSCT) is an intensive but effective treatment for malignant and non-malignant diseases. However, long-term survival often comes at a cost, with survivors experiencing chronic morbidity and are at risk of relapse and secondary malignancy. This study aimed to describe decisional regret in a large cohort of Australian long-term allo-HSCT survivors. A cross-sectional survey was conducted with 441 adults in New South Wales, assessing quality of life (QoL), psychological, social, demographic, and clinical variables. Less than 10% of survivors expressed regret, with chronic graft-versus-host disease being the most important clinical factor. Psycho-socioeconomic factors such as depression, lower QoL scores, lower household income, higher treatment burden, and not resuming sex post-HSCT were also associated with regret. Findings highlight the need for valid informed consent and ongoing follow-up and support for allo-HSCT survivors dealing with life post-transplant. Nurses and healthcare professionals play a critical role in addressing decisional regret in these patients.

Indexed as

Hematopoietic Stem Cell TransplantationQuality of LifeAdultAustraliaCross-Sectional StudiesHumansSurvivorsallogeneic transplantbone marrow transplantationcancerdecisional regrethematopoietic stem cell transplantpsychosocialsurvivorship

Identifiers

PMID37329124
PMCPMC10504814
OpenAlexW4381046812

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.