ArticleFrontiers in medicine2023
Dismissal informs the priorities of endometriosis patients in New Zealand.
Article in Frontiers in medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 1 of them a synthesis that pooled it.
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Who cites it
11 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- The help-seeking experiences of adolescents and youth with endometriosis: a systematic review and thematic synthesis.BMC women's health · 2026Pooled it
- What do we know about medical invalidation and related concepts? - A scoping review and thematic analysis about the definitions, measurements, causes, consequences and potential solutions for medical invalidation.BMC health services research · 2026Article
- 'Not Just Bad Periods': Survey of Aotearoa New Zealand Endometriosis Patients on Their Perspectives on the Impact of Endometriosis Awareness.The Australian & New Zealand journal of obstetrics & gynaecology · 2026Article
- Information Needs of Women Affected by Endometriosis and Their Environment: Qualitative Results from Participatory Workshops.Healthcare (Basel, Switzerland) · 2026Article
- 'I Wish I Fought for Myself More Instead of Just Letting Doctors Dismiss Me': A Combined Qualitative Analysis of Four Cohorts of Aotearoa New Zealand Endometriosis Patients.The Australian & New Zealand journal of obstetrics & gynaecology · 2025Article
- 'The Difficulty of Diagnosis Compromises Patient Care for People With Endometriosis': Interview Study With Aotearoa New Zealand General Practitioners.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Research priorities of endometriosis patients and supporters in Aotearoa New Zealand.The Australian & New Zealand journal of obstetrics & gynaecology · 2024Article
- A decade to wait: Update on the average delay to diagnosis for endometriosis in Aotearoa New Zealand.The Australian & New Zealand journal of obstetrics & gynaecology · 2024Article
- Survey of General Practitioner Perspectives on Endometriosis Diagnosis, Referrals, Management and Guidelines in New Zealand.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- The "most bothersome symptom" construct: A qualitative study of Australians living with endometriosis.Acta obstetricia et gynecologica Scandinavica · 2024Article
- Surgical Treatment of Patients with Endometriosis in the Certified Endometriosis Centers of the DACH Region - A Subanalysis of the Quality Assurance Study QS ENDO pilot.Geburtshilfe und Frauenheilkunde · 2024Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Introduction: Endometriosis is a common condition with average delays to diagnosis in New Zealand of almost 9 years. Methods: In total, 50 endometriosis patients participated in anonymous, asynchronous, online group discussions about their priorities, and their experiences with the development of symptoms, seeking a diagnosis, and receiving appropriate treatment. Results: Higher subsidy of care was the top change endometriosis patients wanted, followed by more research funding. When asked to choose whether research should be focused on improving diagnosis or improving treatment methods, the results were evenly split. Within this cohort, patients highlighted that they did not know the difference between normal menstrual discomfort and pathological endometriotic pain. If, upon seeking help, medical practitioners classified their symptoms as "normal," these dismissals could instill doubt in patients, which made it more difficult for them to continue to seek a diagnosis and effective treatments. Patients who did not express dismissal had a significantly shorter delay from symptom onset to diagnosis of 4.6 ± 3.4 years vs. 9.0 ± 5.2 years. Conclusion: Doubt is a frequent experience for endometriosis patients in New Zealand, which was reinforced by some medical practitioners who were dismissive of their pain and thus prolonged the patient's delay to diagnosis.
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Registered trials
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