ArticlePalliative medicine2023
The intentional pursuit of everyday life while dying: A longitudinal qualitative study of working-aged adults living with advanced cancer.
Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Promising results of a resource- and activity-oriented intervention integrating rehabilitation into palliative care in people with advanced cancer: A feasibility study testing outcome measures.Palliative & supportive care · 2025Trial
- Validation of the Double Awareness Scale: A Novel Measure of Psychological Adaptation to Advanced Cancer.Psycho-oncology · 2026Article
- Article
- Everyday activity strategies perceived by people with advanced cancer: a qualitative explorative study.BMC palliative care · 2025Article
- Palliative Rehabilitation in Patients with Cancer: Definitions, Structures, Processes and Outcomes.Current oncology reports · 2024Review
- Article
- Determining the destination: a co-designed chronic advanced cancer rehabilitation conceptual framework for engagement of individuals with lived experience in rehabilitation research.Research involvement and engagement · 2024Article
- The impact of negative COVID-19 experiences on cancer survivors' health-related quality of life and psychological distress: a moderated mediation model.Frontiers in psychology · 2024Article
- Patients' Experiences in the Transition From Hospital to Home Palliative Care: A Systematic Review and Thematic Synthesis of Qualitative Studies.SAGE open nursingReview
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople living with advanced cancer experience functional decline and increasing difficulty participating in activities of daily living over their final year of life, consequently reducing quality of life. Palliative rehabilitation may serve to mitigate some of these challenges by optimising function. However, limited research and theory explore the rehabilitative process of adaptation amid increasing dependency, often experienced by people living with advanced cancer.
aimTo explore the lived experience of everyday life for working-aged adults living with advanced cancer, and how this changes over time.
designA longitudinal hermeneutic phenomenological approach was employed, using in-depth semi-structured interviews. Data was analysed using inductive thematic analysis, and findings mapped against the Model of Human Occupation and illness experience literature. SETTING/
participantsPurposively sampled working-aged adults (40-64 years) with advanced cancer were recruited by a rural home care team in Western Canada.
resultsThirty-three in-depth interviews were conducted over 19 months with eight adults living with advanced cancer. Advanced cancer and other losses have a disruptive impact on daily life. Despite experiencing progressive functional decline, these adults intentionally sought to participate in valued everyday activities. Adaptation to ongoing deterioration occurred through engagement in daily life.
conclusionsDespite experiencing disruption to routines and daily life, people living with advanced cancer seek to continue doing what is important to them, albeit in a modified form. Adaptation to functional decline is an active, ongoing process and occurs through continued engagement in activities. Palliative rehabilitation can facilitate participation in everyday life.
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