Evidence map›Paper›PMID 37306055›Full record

ArticleBirth defects research2023

Using a health observance event to raise awareness: An assessment of World Birth Defects Day.

Danielle L Kleven, Cara T Mai, Eva Bermejo-Sánchez, Boris Groisman, Salimah Walani, Jessica Peck, Viviana Cosentino, Lorenzo D Botto, Simonetta Zezza, Paul A Romitti and 1 more

Abstract read
In one paragraph

Article in Birth defects research, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Danielle L KlevenInternational Centre on Birth Defects (ICBD), International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), Rome, Italy.ORCID 0000-0002-4887-6998
Cara T MaiNational Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, Georgia, USA.ORCID 0000-0002-7300-0672
Eva Bermejo-SánchezSpanish Collaborative Study of Congenital Malformations (ECEMC), Unidad de Investigación sobre Anomalías Congénitas (UIAC), Institute of Rare Diseases Research (IIER), Instituto de Salud Carlos III, Madrid, Spain.
Boris GroismanNational Network of Congenital Anomalies of Argentina (RENAC), National Center of Medical Genetics (CNGM), National Administration of Laboratories and Health Institutes (ANLIS), National Ministry of Health, Buenos Aires, Argentina.ORCID 0000-0001-6263-2562
Salimah WalaniMiracleFeet, Chapel Hill, North Carolina, USA.
Jessica PeckOak Ridge Institute for Science and Education, Oak Ridge, Tennessee, USA.
Viviana CosentinoLatin American Collaborative Study of Congenital Malformations (ECLAMC) at Center for Medical Education and Clinical Research (CEMIC-CONICET), Buenos Aires, Argentina.
Lorenzo D BottoInternational Centre on Birth Defects (ICBD), International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), Rome, Italy.
Simonetta ZezzaInternational Centre on Birth Defects (ICBD), International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), Rome, Italy.
Paul A RomittiDepartment of Epidemiology, University of Iowa, Iowa City, Iowa, USA.ORCID 0000-0001-5393-9984
Pierpaolo MastroiacovoInternational Centre on Birth Defects (ICBD), International Clearinghouse for Birth Defects Surveillance and Research (ICBDSR), Rome, Italy.

Funding

Intramural CDC HHS CC999999
6 · The paper itself

Abstract

World Birth Defects Day (WorldBDDay), observed annually on March 3, was launched in 2015 to advocate for public health surveillance, research, and prevention of birth defects, along with improved care and treatment for affected individuals. Following its fifth observance in 2019, we assessed WorldBDDay by analyzing: (a) engagement and content of over 2000 WorldBDDay posts on Facebook, Twitter, and Instagram; (b) interview responses from 9 WorldBDDay charter (founding) organizations on their perceptions of strengths and areas for improvement for WorldBDDay; (c) survey responses from 61 WorldBDDay 2019 partner (participating) organizations on their WorldBDDay 2019 activities; and (d) post-2019 social media engagement. Most social media posts (60%) occurred from organizations using Twitter (80% vs. 14% for Instagram and 6% for Facebook), although posts from individuals had higher levels of engagement (e.g., likes and comments). The highest engagement occurred for posts focused on general awareness, prevention, or events. Charter organizations reported the need for existing and new partner engagement, including a designated WorldBDDay contact for regular communication and coordination of activities and prepared prevention-focused messaging. Partner organizations reported using the WorldBDDay toolkit, especially key messages and social media tips, and suggested expanding the toolkit with relevant resources. Post-2019 Twitter engagement was lower than 2019 WorldBDDay (peak event) but showed similar reach to WorldBDDay events prior to 2019. Our assessment identified WorldBDDay health observance events as an important tool to support knowledge dissemination and global community engagement around birth defects. Moving forward, engagement with more individuals and organizations may improve the reach of WorldBDDay.

Indexed as

CommunicationSocial MediaHumansawareness daybirth defectsevaluationhealth awareness dayhealth promotionsocial media

Identifiers

PMID37306055
PMCPMC10947432

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.