Evidence map›Paper›PMID 37301651›Full record

ArticleInjury2023

Centering patient perspectives to achieve injury-related health equity in trauma care systems: Improving trauma registry data.

Kelsey M Conrick, Brianna Mills, Christopher St Vil, Danae Dotolo, Esther Solano, Eileen M Bulger, Saman Arbabi, Madeline Herrenkohl, Monica S Vavilala, Ali Rowhani-Rahbar and 1 more

Abstract read
In one paragraph

Article in Injury, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

11 authors.

Kelsey M ConrickSchool of Social Work, University of Washington, 4101 15th Ave NE, Seattle, WA 98105, United States; Harborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: kmc621@uw.edu.
Brianna MillsHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States; Department of Epidemiology, University of Washington, 3980 15th Ave NE, Seattle, WA 98195, United States. Electronic address: brmills@uw.edu.
Christopher St VilHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States; School of Social Work, University at Buffalo, 685 Baldy Hall, University at Buffalo, North Campus, Buffalo, NY 14260-1050, United States. Electronic address: cstvil@buffalo.edu.
Danae DotoloSchool of Social Work, University of Washington, 4101 15th Ave NE, Seattle, WA 98105, United States; Harborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: danaed@uw.edu.
Esther SolanoHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: solane@uw.edu.
Eileen M BulgerHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States; Department of Trauma Surgery, Harborview Medical Center, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: ebulger@uw.edu.
Saman ArbabiHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States; Department of Trauma Surgery, Harborview Medical Center, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: sarbabi@uw.edu.
Madeline HerrenkohlHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: mdh99@uw.edu.
Monica S VavilalaHarborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States; Department of Anesthesiology and Pain Medicine, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: vavilala@uw.edu.
Ali Rowhani-RahbarDepartment of Epidemiology, University of Washington, 3980 15th Ave NE, Seattle, WA 98195, United States. Electronic address: rowhani@uw.edu.
Megan MooreSchool of Social Work, University of Washington, 4101 15th Ave NE, Seattle, WA 98105, United States; Harborview Injury Prevention & Research Center, University of Washington, Box 359960 325 Ninth Ave, Seattle, WA 98104, United States. Electronic address: mm99@uw.edu.

Funding

The Pediatric Injury and Violence Prevention Student Internship Training Program (INSIGHT)R25HD094336 · NICHD · UNIVERSITY OF WASHINGTON · PI Kushang Patel · 2018 to 2026
$1.2M
Achieving Injury-related Health Equity in the National Trauma Healthcare SystemR21MD013486 · NIMHD · UNIVERSITY OF WASHINGTON · PI MOORE, MEGAN, ROWHANI-RAHBAR, ALI · 2019 to 2020
$597k
NICHD NIH HHS R25 HD094336NIMHD NIH HHS R21 MD013486
6 · The paper itself

Abstract

backgroundLimitations in current data collection systems for patients who experience traumatic injury limit researchers' ability to identify and address disparities in injury and outcomes. We sought to develop and test a patient-centered data-collection system for equity-related data indicators that was acceptable to racially and ethnically diverse patients being treated for traumatic injuries.

methodsHealth equity indicators included in this study were race and ethnicity, language, education, employment, housing, and injury address. We conducted interviews with 245 racially and ethnically diverse trauma patients who were treated at a level-1 trauma center in the US in 2019-2020. We first interviewed 136 patients to develop a culturally resonant process and options for the health equity indicators to be added to a revised data collection system for the electronic medical record. English and Spanish interviews were audio-recorded and transcribed verbatim; qualitative analysis was used to assess patient preferences. We then pilot tested the revised data collection system with an additional 109 trauma patients to assess acceptability. Acceptability was defined as having more than 95% of participants self-identify with one of the proposed options for race/ethnicity, language, education, employment, and housing. Injury address (to identify geographic disparities) was pre-defined as acceptable if at least 85% of participants could identify exact address, cross streets, a landmark or business, or zip code of injury.

resultsA revised data collection system, including culturally resonant indicators and a process to be used by patient registrars to collect health equity data, was pilot tested, refined, and considered acceptable. Culturally resonant question phrasing/answer options for race/ethnicity, language, education, employment, housing status, and injury address were identified as acceptable.

conclusionsWe identified a patient-centered data collection system for health equity measures with racially and ethnically diverse patients who have experienced traumatic injury. This system has the potential to increase data quality and accuracy, which is critical to quality improvement efforts and for researchers seeking to identify groups most impacted by racism and other structural barriers to equitable health outcomes and effective intervention points.

Indexed as

Emergency Medical ServicesHealth EquityData CollectionEthnicityHumansRoutinely Collected Health DataDisparitiesElectronic medical recordHealth equityInjuryTrauma registry

Identifiers

PMID37301651
PMCPMC13274319

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.