Evidence map›Paper›PMID 37295796›Full record

ArticleBJGP open2023

Treatment burden in multiple long-term conditions: a mixed-methods study protocol.

Rachel Johnson, Anastasiia G Kovalenko, Thomas Blakeman, Maria Panagioti, Michael Lawton, Shoba Dawson, Polly Duncan, Simon Ds Fraser, Jose M Valderas, Simon Chilcott and 2 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in BJGP open, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Rachel JohnsonCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID http://orcid.org/0000-0003-0266-3433
Anastasiia G KovalenkoCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK a.g.kovalenko@bristol.ac.uk.ORCID http://orcid.org/0000-0002-4299-3587
Thomas BlakemanDivision of Population Health, Health Services Research and Primary Care, The University of Manchester, Manchester, UK.ORCID http://orcid.org/0000-0003-3298-8423
Maria PanagiotiDivision of Population Health, Health Services Research and Primary Care, The University of Manchester, Manchester, UK.ORCID http://orcid.org/0000-0002-7153-5745
Michael LawtonCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID https://orcid.org/0000-0002-3419-0354
Shoba DawsonCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID http://orcid.org/0000-0002-6700-6445
Polly DuncanCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID https://orcid.org/0000-0002-2244-3254
Simon Ds FraserSchool of Primary Care, Population Science and Medical Education, Faculty of Medicine, University of Southampton, Southampton, UK.ORCID https://orcid.org/0000-0002-4172-4406
Jose M ValderasCentre for Research in Health Systems Performance (CRiHSP) and Division of Family Medicine, Department of Medicine, Yong Loo Lin School of Medicine, National University of Singapore, Queenstown, Singapore.ORCID http://orcid.org/0000-0002-9299-1555
Simon Chilcott
Rebecca GouldingDivision of Population Health, Health Services Research and Primary Care, The University of Manchester, Manchester, UK.ORCID http://orcid.org/0000-0003-0716-5126
Chris SalisburyCentre for Academic Primary Care, Bristol Medical School, University of Bristol, Bristol, UK.ORCID http://orcid.org/0000-0002-4378-3960

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundTreatment burden represents the work patients undertake because of their health care, and the impact of that effort on the patient. Most research has focused on older adults (aged >65 years) with multiple long-term conditions (multimorbidity) (MLTC-M), but there are now more younger adults (aged 18-65 years) living with MLTC-M and they may experience treatment burden differently. Understanding experiences of treatment burden, and identifying those most at risk of high treatment burden, are important for designing primary care services to meet their needs.

aimTo understand the treatment burden associated with MLTC-M, for people aged 18-65 years, and how primary care services affect this burden. DESIGN &

settingMixed-methods study in up to 33 primary care practices in two UK regions.

methodThe following two approaches will be used: (i) in-depth qualitative interviews with adults living with MLTC-M (approximately 40 participants) to understand their experiences of treatment burden and the impact of primary care, with a think-aloud aspect to explore face validity of a novel short treatment burden questionnaire (STBQ) for routine clinical use in the initial 15 interviews; (ii) cross-sectional patient survey (approximately 1000 participants), with linked routine medical record data to examine the factors associated with treatment burden for people living with MLTC-M, and to test the validity of STBQ.

conclusionThis study will generate in-depth understanding of the treatment burden experienced by people aged 18-65 years living with MLTC-M, and how primary care services affect this burden. This will inform further development and testing of interventions to reduce treatment burden, and potentially influence MLTC-M trajectories and improve health outcomes.

Indexed as

general practicemultimorbidityprimary health careprimary healthcareyoung adult

Identifiers

PMID37295796
PMCPMC11176699

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.