Evidence map›Paper›PMID 37293987›Full record

ArticleEuropean psychiatry : the journal of the Association of European Psychiatrists2023

Opportunities and challenges of self-binding directives: A comparison of empirical research with stakeholders in three European countries.

Matthé Scholten, Simone A Efkemann, Mirjam Faissner, Marleen Finke, Jakov Gather, Tania Gergel, Astrid Gieselmann, Lia van der Ham, Georg Juckel, Laura van Melle and 9 more

Abstract read
In one paragraph

Article in European psychiatry : the journal of the Association of European Psychiatrists, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Matthé ScholtenInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0001-8000-8974
Simone A EfkemannDepartment of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0003-0611-4247
Mirjam FaissnerDepartment of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0002-9635-7850
Marleen FinkeInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0001-7531-6067
Jakov GatherInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0003-1681-7472
Tania GergelInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.ORCID 0000-0001-9155-8277
Astrid GieselmannInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0002-2098-3054
Lia van der HamDepartment of Ethics, Law and Humanities, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-5586-1631
Georg JuckelDepartment of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0001-9860-9620
Laura van MelleDepartment of Ethics, Law and Humanities, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0002-3173-1354
Gareth OwenInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.ORCID 0000-0002-5166-9332
Sarah PotthoffInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0003-0434-8218
Lucy A StephensonInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.ORCID 0000-0002-6888-3853
George SzmuklerInstitute of Psychiatry, Psychology and Neuroscience, King's College London, London, UK.ORCID 0000-0001-5053-3073
Astrid VellingaMentrum/Arkin, Amsterdam, The Netherlands.ORCID 0000-0002-1868-1612
Jochen VollmannInstitute for Medical Ethics and History of Medicine, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0002-0148-6431
Yolande VoskesDepartment of Ethics, Law and Humanities, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0002-0211-8892
Anna WerningDepartment of Psychiatry, Psychotherapy and Preventive Medicine, LWL University Hospital, Ruhr University Bochum, Bochum, Germany.ORCID 0000-0002-9489-1398
Guy WiddershovenDepartment of Ethics, Law and Humanities, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-7620-6812

Funding

Wellcome TrustWellcome Trust 203376/Z/16/Z
6 · The paper itself

Abstract

backgroundSelf-binding directives (SBDs) are psychiatric advance directives that include a clause in which mental health service users consent in advance to involuntary hospital admission and treatment under specified conditions. Medical ethicists and legal scholars identified various potential benefits of SBDs but have also raised ethical concerns. Until recently, little was known about the views of stakeholders on the opportunities and challenges of SBDs.

aimsThis article aims to foster an international exchange on SBDs by comparing recent empirical findings on stakeholders' views on the opportunities and challenges of SBDs from Germany, the Netherlands, and the United Kingdom.

methodComparisons between the empirical findings were drawn using a structured expert consensus process.

resultsFindings converged on many points. Perceived opportunities of SBDs include promotion of autonomy, avoidance of personally defined harms, early intervention, reduction of admission duration, improvement of the therapeutic relationship, involvement of persons of trust, avoidance of involuntary hospital admission, addressing trauma, destigmatization of involuntary treatment, increase of professionals' confidence, and relief for proxy decision-makers. Perceived challenges include lack of awareness and knowledge, lack of support, undue influence, inaccessibility during crisis, lack of cross-agency coordination, problems of interpretation, difficulties in capacity assessment, restricted therapeutic flexibility, scarce resources, disappointment due to noncompliance, and outdated content. Stakeholders tended to focus on practical challenges and did not often raise fundamental ethical concerns.

conclusionsStakeholders tend to see the implementation of SBDs as ethically desirable, provided that the associated challenges are addressed.

Indexed as

Advance DirectivesMental Health ServicesEmpirical ResearchEuropeHumansProxyAdvance statementcrisis planpsychiatric advance directiveself-binding directiveUlysses arrangement

Identifiers

PMID37293987
PMCPMC10305757

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.