ArticleInternational journal of mental health systems2023
What does receiving autism diagnosis in adulthood look like? Stakeholders' experiences and inputs.
Article in International journal of mental health systems, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 4 of them syntheses that pooled it.
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Who cites it
10 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- The Views of Autistic Adults on Early Autism Interventions: A Mixed-Methods Systematic Literature Review.Autism : the international journal of research and practice · 2026Pooled it
- Delayed Diagnosis of Autism Spectrum Disorder in Adolescent Boys.Advances in experimental medicine and biology · 2026Pooled it
- Who, when, where, and why: A systematic review of "late diagnosis" in autism.Autism research : official journal of the International Society for Autism Research · 2025Pooled it
- Exploring the landscape of adult autism research in psychology: a bibliometric and network analysis.Frontiers in psychology · 2024Pooled it
- Evaluating the Acceptability of an Early Adoption of the Tele-ASD Diagnostic Assessment Tool for Adults (TADA).Journal of autism and developmental disorders · 2026Article
- Lived Experience, Family, and Clinician Perspectives on Barriers to Adult Autism Diagnosis and Post-Diagnostic Supports: A Mixed-Methods Systematic Review.Journal of developmental and physical disabilities · 2026Article
- Gender differences in autism prevalence: origins of bias and its current scientific relevance.Frontiers in psychiatry · 2026Article
- Diagnostic Experiences and Barriers to Diagnosis Among Autistic Adults in the United States: Associations with Diagnostic Timing and Gender.Journal of autism and developmental disorders · 2025Article
- Re-imagining connection: the role of late autism diagnosis in eating disorder recovery and social support.Journal of eating disorders · 2025Article
- A cross-sectional study of public knowledge and stigma towards autism spectrum disorder in Lebanon.Scientific reports · 2025Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe age of diagnosis is crucial for optimal health outcomes; however, some individuals with Autism Spectrum Disorder (ASD) may not be diagnosed until adulthood. Limited information is available about the lived experience of receiving a diagnosis during adulthood. Thus, we aimed to investigate stakeholders' experiences about the ASD diagnosis during adulthood.
methodWe interviewed 18 individuals including 13 adults with ASD who had received a late diagnosis during adulthood and 5 parents of individuals with ASD from various Canadian provinces.
resultsUsing a thematic analysis, three main themes emerged: (a) noticing differences and similarities, (b) hindering elements to diagnosis, and (c) emotional response to diagnostic odyssey.
conclusionThis study adds to the literature about experiences of receiving ASD diagnosis in adulthood. Given the impact of diagnosis on individuals, it is important to minimize the barriers to ensure individuals who require ASD-related supports can access them in a timely and effective manner. This study highlights the importance of receiving an ASD diagnosis and facilitates positive health outcomes. The findings from the current study can be used to guide adult diagnostic processes and practices to help make ASD diagnosis more accessible.
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