ArticleBJPsych bulletin2024
Care pathways for longstanding eating disorders must offer paths to recovery, not managed decline.
Article in BJPsych bulletin, 2024. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 28 citations in OpenAlex.
- Do new labels solve old problems? Conceptual, ethical, and clinical challenges of constructing restrictive eating behaviours as "self-harm".Journal of eating disorders · 2026Article
- Conceptualising trauma in eating disorders: a reflexive commentary on the role of neglect, iatrogenic harm, and epistemic injury.Journal of eating disorders · 2026Article
- Investigation of associations between self-reported sensory processing, eating disorder symptoms, neurodivergence, and gender congruence from a lived experience lens.Journal of eating disorders · 2026Article
- Who gets to decide? Matters arising from Robinson et al. (2024), "Can people with longstanding bulimia nervosa suffer from severe and enduring eating disorder? A qualitative study".Journal of eating disorders · 2026Article
- Key features of illness and treatment experiences in longstanding anorexia nervosa: qualitative descriptive study.BJPsych open · 2025Article
- "I could be living a totally different life right now": lived experience and caregiver perspectives on the prevention of eating disorders.Journal of eating disorders · 2025Article
- Barriers and facilitators to treatment in severe and enduring eating disorders: a mixed-methods study of access, engagement, and lived experience.Journal of eating disorders · 2025Article
- A shift or a substitution? On naming, exclusion, and co-production in longstanding eating disorders: matters arising from Lubieniecki et al. (2025).Journal of eating disorders · 2025Article
- The journey to recovery: unmet dental care needs in individuals with eating disorders.Journal of eating disorders · 2025Article
- A lifeline or a label? lived experience perspectives on the severe and enduring eating disorder (SEED) classification in eating disorder treatment.Journal of eating disorders · 2025Article
- A call for strategy on eating disorders: the need for a comprehensive eating disorder strategy in England and specific guidance for the remote delivery of eating disorder services.Journal of eating disorders · 2025Article
- Redefining prevention and early intervention to include longstanding and severe eating disorders.Journal of eating disorders · 2025Article
- "I'll do it on my own, but I'm never alone"[1 p. 402]: lived experience and practitioner perspectives of autonomy in longstanding and severe eating disorder treatment and recovery-a rapid evidence review.Journal of eating disorders · 2024Review
- Applying integrated enhanced cognitive behaviour therapy (I-CBTE) to severe and longstanding eating disorders (SEED) Paper 2: An in-depth case study for clinicians.Journal of eating disorders · 2024Article
- Exploring body uneasiness in severe and enduring eating disorders: insights from clinical practice.Journal of eating disorders · 2024Article
- Harm reduction in severe and long-standing Anorexia Nervosa: part of the journey but not the destination-a narrative review with lived experience.Journal of eating disorders · 2024Review
- Two identical twin pairs discordant for longstanding anorexia nervosa and OSFED: lived experience accounts of eating disorder and recovery processes.Journal of eating disorders · 2024Article
- Clinical care for severe and persistent eating disorders in pediatric populations: Perspectives of health professionals.Journal of eating disorders · 2024Article
- Discordant conceptualisations of eating disorder recovery and their influence on the construct of terminality.Journal of eating disorders · 2024Article
- "Terminal anorexia nervosa" may not be terminal: An empirical evaluation.Journal of psychopathology and clinical science · 2024Article
Corrections and comments
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Authors and funding
1 author at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Eating disorders are historically underserved in healthcare, but are increasingly prevalent and recognised for their high costs regarding mortality, quality of life and the economy. Those with longstanding eating disorders are commonly labelled 'severe and enduring' (SEED), which has been challenged for its conceptual vagueness and potential to discourage patients. Attempts to define individuals from this cohort as having 'terminal' illness have also gained traction in recent years. This paper is grounded in lived/living experience and relevant research. It challenges the logical coherence and utility of SEED, arguing that the word 'enduring' unhelpfully situates intractability of longstanding illness within patients themselves and the nature of their illness. This risks a sense of inevitability and overlooks the important role of contextual factors such as lacking resources and insufficient evidence for withholding active treatment. Recommendations suggest approaches to dismantling unhelpful binaries between early intervention and intensive support, recovery and decline.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.