Evidence map›Paper›PMID 37286370›Full record

ArticleNephrology (Carlton, Vic.)2023

Financial toxicity experienced by rural Australian families with chronic kidney disease.

Nicole Scholes-Robertson, Katrina Blazek, Allison Tong, Talia Gutman, Jonathan C Craig, Beverley M Essue, Kirsten Howard, Germaine Wong, Martin Howell

Open access · hybridAbstract read
In one paragraph

Article in Nephrology (Carlton, Vic.), 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed, 1 pooled it
13.1field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 1 synthesis or guideline pooled it, 23 citations in OpenAlex.

  1. Preference-based measures of health-related quality of life in Indigenous people: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Pooled it
  2. Article
  3. More than meets the eye: The hidden burden of temporary feeding tubes on children and their families.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Financial Toxicity and Kidney Disease in Children and Adults: A Scoping Review.International journal of nephrology and renovascular disease · 2025
    Review
  10. Article
  11. Review
  12. Article
  13. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 4 institutions in 2 countries.

Nicole Scholes-RobertsonSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0001-8260-0453
Katrina BlazekCentre for Kidney Research, The Children's Hospital at Westmead, Sydney, New South Wales, Australia.
Allison TongSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0001-8973-9538
Talia GutmanSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0002-6341-8725
Jonathan C CraigCollege of Medicine and Public Health, Flinders University, Adelaide, South Australia, Australia.
Beverley M EssueInstitute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.
Kirsten HowardSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Germaine WongSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
Martin HowellSydney School of Public Health, The University of Sydney, Sydney, New South Wales, Australia.
The University of Sydney · AUChildren's Hospital at Westmead · AUFlinders University · AUUniversity of Toronto · CA

Funding

National Health and Medical Research Council 1106716National Health and Medical Research Council Postgraduate Scholarship ID1190850
6 · The paper itself

Abstract

aimChronic kidney disease (CKD) and its treatment places a financial burden on healthcare systems and households worldwide, yet little is known of its financial impact, on those who reside in rural settings. We aimed to quantify the financial impacts and out-of-pocket expenditure experienced by adult rural patients with CKD in Australia.

methodsA web based structured survey was completed between November 2020 and January 2021. English speaking participants over 18 years of age, diagnosed with CKD stages 3-5, those receiving dialysis or with a kidney transplant, who lived in a rural location in Australia.

resultsIn total 77 (69% completion rate) participated. The mean out of pocket expenses were 5056 AUD annually (excluding private health insurance costs), 78% of households experienced financial hardship with 54% classified as experiencing financial catastrophe (out-of-pocket expenditure greater than 10% of household income). Mean distances to access health services for all rural and remote classifications was greater than 50 kilometres for specialist nephrology services and greater than 300 kilometres for transplanting centres. Relocation for a period greater than 3 months to access care was experienced by 24% of participants.

conclusionRural households experience considerable financial hardship due to out-of-pocket costs in accessing treatment for CKD and other health-related care, raising concerns about equity in Australia, a high-income country with universal healthcare.

Indexed as

Financial StressRenal Insufficiency, ChronicAdolescentAdultAustraliaDelivery of Health CareHealth ExpendituresHumansRenal Dialysisaccesschronic kidney diseasefinancial toxicityout-of-pocket costsquality of life

Identifiers

PMID37286370
PMCPMC10947551
OpenAlexW4379768880

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.