ArticleHealth expectations : an international journal of public participation in health care and health policy2023
Exploring the impact of engagement in mental health and substance use research: A scoping review and thematic analysis.
Article in Health expectations : an international journal of public participation in health care and health policy, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed.
- Effects of a psychoeducational group intervention for adults diagnosed with ADHD: a pilot randomized controlled study.BMC psychiatry · 2025Trial
- Food insecurity in adults living with severe mental illness in Australia: an exploration of causes and experiences using a co-design approach.Social psychiatry and psychiatric epidemiology · 2026Article
- 'Working Together to Meet in the Middle'. A Qualitative Descriptive Study of Power Dynamics in Lived Experience and Family Engagement in Mental Health and Substance Use Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan.Research involvement and engagement · 2026Article
- How Lived Experience Advisory Groups Contribute to the Design and Conduct of Mental Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- "Truly having a conversation with each member about their needs": accessibility considerations for the engagement of people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2026Article
- The community representative council of the National Drug Abuse Treatment Clinical Trials Network: Co-design and early impact.Journal of substance use and addiction treatment · 2026Article
- Tools and Resources for Engaging People With Lived and Living Experience and Caregivers in Mental Health and Substance Use Research: Findings From a Survey and Community Consultation Events.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Supporting researchers to involve patient partners in health service research: developing and assessing the feasibility and acceptability of a co-produced training programme for researchers.Research involvement and engagement · 2026Article
- Recommendations for enhancing student leadership in post-secondary mental health research.Research involvement and engagement · 2026Article
- Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.Internet interventions · 2026Review
- Article
- Creating a collaborative and impactful research environment: community partner reflections on the DeStress-II study.Research involvement and engagement · 2025Article
- The perspectives of people with lived experience, families, and researchers with the manuscript writing process in mental health and substance use research: a qualitative study.Research involvement and engagement · 2025Article
- Digital Conversational Agents for the Mental Health of Treatment-Seeking Youth: Scoping Review.JMIR mental health · 2025Article
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- A systematic review of co-production approaches that involve family members, loved ones, or carers in the development of mental health or substance use resources/interventions.Research involvement and engagement · 2025Review
- 'Every Voice Matters': A Photovoice Study on the Personal Impacts of Co-Production in Recovery Colleges.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Co-Designing Lived Experience Guide Support for First Responder Mental Health: Defining the Role and Considerations for Implementation.Health expectations : an international journal of public participation in health care and health policy · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
backgroundThere is growing evidence demonstrating the impact of engaging people with lived experience (PWLE) in health research. However, it remains unclear what evidence is available regarding the impact of engagement specific to mental health and substance use research.
methodsA scoping review of three databases and thematic analysis were conducted. Sixty-one articles that described the impact of engagement in mental health and substance use research on either individual experiences or the research process were included.
resultsKey topics include (a) the impact of engagement on individual experiences; (b) the impact of engagement on the research process; and (c) facilitators and barriers to impactful engagement. Studies largely focused on the perceived positive impact of engagement on PWLE (e.g., personal and professional growth, empowering and rewarding experience, feeling heard and valued), researchers (e.g., rewarding experience, deeper understanding of research topic, changes to practice), and study participants (e.g., added value, fostered a safe space). Engagement activities were perceived to improve facets of the research process, such as improvements to research quality (e.g., rigour, trustworthiness, relevance to the community), research components (e.g., recruitment), and the research environment (e.g., shifted power dynamics). Facilitators and barriers were mapped onto the lived experience, researcher, team, and institutional levels. Commonly used terminologies for engagement and PWLE were discussed.
conclusionEngaging PWLE-from consultation to co-creation throughout the research cycle-is perceived as having a positive impact on both the research process and individual experiences. Future research is needed to bring consistency to engagement, leverage the facilitators to engagement, and address the barriers, and in turn generate research findings that have value not only to the scientific community, but also to the people impacted by the science. PATIENT OR PUBLIC CONTRIBUTION: PWLE were engaged throughout the scoping review process, including the screening phase, analysis phase, and write-up phase.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.