Evidence map›Paper›PMID 37260770›Full record

ArticleFrontiers in genetics2023

Toward an open access genomics database of South Africans: ethical considerations.

Amy Gooden, Donrich Thaldar

Abstract read
In one paragraph

Article in Frontiers in genetics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Review
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Amy GoodenSchool of Law, University of KwaZulu-Natal, Durban, South Africa.
Donrich ThaldarSchool of Law, University of KwaZulu-Natal, Durban, South Africa.

Funding

DS-I Africa - LAWU01MH127690 · NIMH · UNIVERSITY OF KWAZULU-NATAL · PI THALDAR, DONRICH WILLEM · 2021 to 2023
$1.2M
NIMH NIH HHS U01 MH127690
6 · The paper itself

Abstract

Genomics research holds the potential to improve healthcare. Yet, a very low percentage of the genomic data used in genomics research internationally relates to persons of African origin. Establishing a large-scale, open access genomics database of South Africans may contribute to solving this problem. However, this raises various ethics concerns, including privacy expectations and informed consent. The concept of

Indexed as

autonomydatabasegenomics researchopen accessopen consentprivacySouth AfricaUbuntu

Identifiers

PMID37260770
PMCPMC10228717

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.