Evidence map›Paper›PMID 37255708›Full record

ArticleFrontiers in cardiovascular medicine2023

Perceived self-efficacy and empowerment in patients at increased risk of sudden cardiac arrest.

Brianna Davies, Katherine S Allan, Sandra L Carroll, Karen Gibbs, Jason D Roberts, Ciorsti MacIntyre, Christian Steinberg, Rafik Tadros, Paul Dorian, Jeff S Healey and 6 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Frontiers in cardiovascular medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Brianna DaviesCentre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.
Katherine S AllanDivision of Cardiology, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada.
Sandra L CarrollSchool of Nursing, Faculty of Health Science, Population Health Research Institute, McMaster University, Hamilton, ON, Canada.
Karen GibbsCentre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.
Jason D RobertsSection of Cardiac Electrophysiology, Division of Cardiology, Department ofMedicine, Western University, London, ON, Canada.
Ciorsti MacIntyreQEII Health Sciences Center, Halifax, NS, Canada.
Christian SteinbergInstitut Universitaire de Cardiologie et Pneumologie de Québec, Laval University, Quebec City, QC, Canada.
Rafik TadrosDepartment of Medicine, Cardiovascular Genetics Center, Montreal Heart Institute, Université de Montréal, Montreal, QC, Canada.
Paul DorianDivision of Cardiology, St. Michael's Hospital, University of Toronto, Toronto, ON, Canada.
Jeff S HealeySchool of Nursing, Faculty of Health Science, Population Health Research Institute, McMaster University, Hamilton, ON, Canada.
Martin GardnerQEII Health Sciences Center, Halifax, NS, Canada.
Zachary W M LaksmanCentre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.
Andrew D KrahnCentre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.
Anne FournierDivision of Pediatric Cardiology, CHU Sainte-Justine, Université de Montréal, Montreal,QC, Canada.
Colette SeiferDepartment of Internal Medicine, St Boniface Hospital, University of Manitoba, Winnipeg, MB, Canada.
Sandra B LauckCentre for Cardiovascular Innovation, St. Paul's and Vancouver General Hospitals, University of British Columbia, Vancouver, BC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The role of multidisciplinary clinics for psychosocial care is increasingly recognized for those living with inherited cardiac conditions (ICC). In Canada, access to healthcare providers differ between clinics. Little is known about the relationship between access to specialty care and a patient's ability to cope with, and manage their condition. Methods: We leveraged the Hearts in Rhythm Organization (HiRO) to conduct a cross-sectional, community-based survey of individuals with ICC and their family members. We aimed to describe access to services, and explore the relationships between participants' characteristics, cardiac history and self-reported health status and self-efficacy (GSE: General Self-Efficacy Scale) and empowerment (GCOS-24: Genetic Counseling Outcome Scale). Results: We collected 235 responses from Canadian participants in 10 provinces and territories. Overall, 63% of participants reported involvement of a genetic counsellor in their care. Access to genetic testing was associated with greater empowerment [mean GCOS-24: 121.14 (SD = 20.53) vs. 105.68 (SD = 21.69); Conclusion: Differences in resource accessibility, clinical history and self-reported health status impact the perceived self-efficacy and empowerment of patients with ICC. Future research evaluating interventions to improve patient outcomes is recommended.

Indexed as

cardiogeneticsempowermentgenetic counsellingpatient engagementself efficacy

Identifiers

PMID37255708
PMCPMC10225561

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.