Evidence map›Paper›PMID 37250990›Full record

ArticleJournal of clinical and translational science2023

Hereditary renal cancer patient and public involvement group: A collaborative, consensus decision process to develop a communication tool for patient use.

Ellen Colvin, Stephanie Ng, John Hepworth, Janice Hepworth, Thomas Hartley, Nicola Godfrey, Karen Tricker, Jeanette Rothwell, Glenda Beaman, Emma R Woodward

Open access · goldAbstract read
In one paragraph

Article in Journal of clinical and translational science, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact, top 96% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed, 0 citations in OpenAlex.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 4 institutions in 1 country.

Ellen ColvinManchester Centre for Genomic Medicine, St. Mary's Hospital, Manchester University NHS Foundation Trust, Manchester, UK.ORCID https://orcid.org/0000-0002-9028-9092
Stephanie NgFaculty of Biology, Medicine and Health, University of Manchester, Manchester, UK.
John HepworthVHL UK/IrelandCharity, Nottinghamshire, UK.
Janice HepworthVHL UK/IrelandCharity, Nottinghamshire, UK.
Thomas HartleyResearch & Innovation, Manchester University Hospital NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.
Nicola GodfreyResearch & Innovation, Manchester University Hospital NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.
Karen TrickerResearch & Innovation, Manchester University Hospital NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.
Jeanette RothwellResearch & Innovation, Manchester University Hospital NHS Foundation Trust, Manchester Academic Health Science Centre, Manchester, UK.
Glenda BeamanManchester Centre for Genomic Medicine, St. Mary's Hospital, Manchester University NHS Foundation Trust, Manchester, UK.
Emma R WoodwardManchester Centre for Genomic Medicine, St. Mary's Hospital, Manchester University NHS Foundation Trust, Manchester, UK.
Manchester Academic Health Science Centre · GBNottinghamshire County Council · GBUniversity of Manchester · GBManchester University NHS Foundation Trust · GB

Funding

Cancer Research UK 30910
6 · The paper itself

Abstract

Patient and public involvement (PPI) must be more frequently embedded within clinical research to ensure translational outcomes are patient-led and meet patient needs. Active partnerships with patients and public groups are an important opportunity to hear patient voices, understand patient needs, and inform future research avenues. A hereditary renal cancer (HRC) PPI group was developed with the efforts of patient participants (

Indexed as

Early cancer detectionhereditary renal cancerpatient and public involvementpatient information sheetrenal cell carcinomas

Identifiers

PMID37250990
PMCPMC10225253
OpenAlexW4360985080

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.