ArticleMethods of information in medicine2023
From Paper Files to Web-Based Application for Data-Driven Monitoring of HIV Programs: Nigeria's Journey to a National Data Repository for Decision-Making and Patient Care.
Article in Methods of information in medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Exploring Technological Solutions for Interoperability Between Patient Electronic Medical Records and Clinical Registries: Scoping Review.Journal of medical Internet research · 2026Article
- Developing a National eHealth Enterprise Architecture in Botswana: a digital health case study.Oxford open digital health · 2026Article
- Use of Biometrics for Records Deduplication: Case Study of the National Data Repository in Nigeria.Online journal of public health informatics · 2025Article
- Evaluating the digital health technology landscape in sub-Saharan Africa and its implications for cardiovascular health.NPJ cardiovascular health · 2025Review
- Data Interoperability in Context: The Importance of Open-Source Implementations When Choosing Open Standards.Journal of medical Internet research · 2025Article
- Article
- Stakeholders' perspective on inclusion of key populations unique identifier codes in routine health information management system in South Africa.Southern African journal of HIV medicine · 2025Article
- Ensuring equitable access to quality HIV care for affected populations in complex sociocultural settings: Lessons from Nigeria.PloS one · 2025Article
- Piloting the Inclusion of the Key Populations Unique Identifier Code in the South African Routine Health Information Management System: Protocol for a Multiphased Study.JMIR research protocols · 2024Article
- Modernizing Public Health Data Systems and Workforce Capacity: The Centers for Disease Control and Prevention's Public Health Informatics Fellowship Program.Journal of public health management and practice : JPHMPArticle
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Authors and funding
33 authors.
Funding
Abstract
backgroundTimely and reliable data are crucial for clinical, epidemiologic, and program management decision making. Electronic health information systems provide platforms for managing large longitudinal patient records. Nigeria implemented the National Data Repository (NDR) to create a central data warehouse of all people living with human immunodeficiency virus (PLHIV) while providing useful functionalities to aid decision making at different levels of program implementation.
objectiveWe describe the Nigeria NDR and its development process, including its use for surveillance, research, and national HIV program monitoring toward achieving HIV epidemic control.
methodsStakeholder engagement meetings were held in 2013 to gather information on data elements and vocabulary standards for reporting patient-level information, technical infrastructure, human capacity requirements, and information flow. Findings from these meetings guided the development of the NDR. An implementation guide provided common terminologies and data reporting structures for data exchange between the NDR and the electronic medical record (EMR) systems. Data from the EMR were encoded in extensible markup language and sent to the NDR over secure hypertext transfer protocol after going through a series of validation processes.
resultsBy June 30, 2021, the NDR had up-to-date records of 1,477,064 (94.4%) patients receiving HIV treatment across 1,985 health facilities, of which 1,266,512 (85.7%) patient records had fingerprint template data to support unique patient identification and record linkage to prevent registration of the same patient under different identities. Data from the NDR was used to support HIV program monitoring, case-based surveillance and production of products like the monthly lists of patients who have treatment interruptions and dashboards for monitoring HIV test and start.
conclusionThe NDR enabled the availability of reliable and timely data for surveillance, research, and HIV program monitoring to guide program improvements to accelerate progress toward epidemic control.
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