Evidence map›Paper›PMID 37247218›Full record

ReviewJMIR aging2023

The Experiences of Informal Caregivers of People With Dementia in Web-Based Psychoeducation Programs: Systematic Review and Metasynthesis.

Ying Yu, Lily Xiao, Shahid Ullah, Claudia Meyer, Jing Wang, Anne Margriet Pot, Fathimath Shifaza

Open access · goldAbstract readReview
In one paragraph

Review in JMIR aging, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
17citing papers in PubMed, 1 pooled it
5.8field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

17 citing papers in PubMed, 1 synthesis or guideline pooled it, 26 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 4 countries.

Ying YuCollege of Nursing and Health Sciences, Flinders University, South Australia, Australia.ORCID https://orcid.org/0000-0001-8110-1038
Lily XiaoCollege of Nursing and Health Sciences, Flinders University, South Australia, Australia.ORCID https://orcid.org/0000-0002-4631-2443
Shahid UllahCollege of Medicine and Public Health, Flinders University, Bedford Park, South Australia, Australia.ORCID https://orcid.org/0000-0003-0010-2640
Claudia MeyerBolton Clarke Research Institute, Melbourne, Victoria, Australia.ORCID https://orcid.org/0000-0001-5853-6623
Jing WangFaculty of Nursing, Health Science Center, Xi'an Jiao tong University, Xi'an, Shanxi, China.ORCID https://orcid.org/0000-0002-4979-1902
Anne Margriet PotErasmus School of Health Policy & Management, Erasmus University Amsterdam, Amsterdam, Netherlands.ORCID https://orcid.org/0000-0003-2917-4322
Fathimath ShifazaCollege of Nursing and Health Sciences, Flinders University, South Australia, Australia.ORCID https://orcid.org/0000-0001-6742-2724
Flinders University · AULa Trobe University · AUNorth-West University · ZAXi'an Jiaotong University · CN

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInformal caregivers of people living with dementia experience a higher level of physical and mental stress compared with other types of caregivers. Psychoeducation programs are viewed as beneficial for building caregivers' knowledge and skills and for decreasing caregiver stress.

objectiveThis review aimed to synthesize the experiences and perceptions of informal caregivers of people with dementia when participating in web-based psychoeducation programs and the factors that enable and impede informal caregivers' engagement in web-based psychoeducation programs.

methodsThis review followed the Joanna Briggs Institute protocol of systematic review and meta-aggregation of qualitative studies. We searched 4 English databases, 4 Chinese databases, and 1 Arabic database in July 2021.

resultsA total of 9 studies written in English were included in this review. From these studies, 87 findings were extracted and grouped into 20 categories. These categories were further synthesized into 5 findings: web-based learning as an empowering experience, peer support, satisfactory and unsatisfactory program content, satisfactory and unsatisfactory technical design, and challenges encountered in web-based learning.

conclusionsHigh-quality and carefully designed web-based psychoeducation programs offered positive experiences for informal caregivers of people living with dementia. To meet broader caregiver education and support needs, program developers should consider information quality and relevancy, the support offered, individual needs, flexibility in delivery, and connectedness between peers and program facilitators.

Indexed as

dementiainformal caregiversmetasynthesisonlinepsychoeducationqualitative researchsystematic reviewweb based

Identifiers

PMID37247218
PMCPMC10262022
OpenAlexW4367624205

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.