SynthesisPloS one2023
Treatment burden in individuals living with and beyond cancer: A systematic review of qualitative literature.
Synthesis in PloS one, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07667881 (OUTPATIENT CANCER PATIENTS), which is not on this map. Cited by 30 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Outpatient cancer patients: the relationship between information overload, symptom severity, and empowerment level
Who cites it
30 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Cancer patients' experiences of "time toxicity": a qualitative meta-synthesis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Pooled it
- Barriers to timely diagnosis and treatment of childhood cancer in Sub-Sahara Africa: a qualitative systematic review.BMC cancer · 2025Pooled it
- Pooled it
- Psychosocial experiences of prostate cancer survivors after treatment: a systematic review of qualitative studies.Frontiers in public health · 2025Pooled it
- Article
- The mirrored burden and accountable handovers in cancer survivorship: co‑designing a post‑treatment transition standard.npj health systems · 2026Article
- 'You've Given Me My Voice'-Enhancing Engagement in Exercise Oncology Research: A Patient and Public Involvement Approach to Co‑Designing a Pre‑Radiotherapy Exercise Programme With People Living With Lung Cancer.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- The Interplay of Quality of Life and Satisfaction with Nursing Care in Cancer Patients: A Narrative Review.Clinics and practice · 2026Review
- Person-First or Disease-First? Language Choices in Cancer Communication.Nursing reports (Pavia, Italy) · 2026Article
- Article
- Oncologist perspectives on the time toxicity of palliative systemic treatments for advanced cancer.JNCI cancer spectrum · 2026Article
- A "well-kept secret": facilitators and barriers to occupational therapy referral as a component of supportive cancer care in the United States.Frontiers in medicine · 2026Article
- Time-Toxicity Indicators and Mitigation Strategies in Cancer Care: A Scoping Review.Journal of multidisciplinary healthcare · 2026Review
- Current Status and Associated Factors of Treatment Burden in Stroke Patients: Mixed-Methods Research With a Convergent Parallel Design.Nursing research and practice · 2026Article
- Evaluating Treatment Burden in Patients with Complex Needs Receiving a Transition of Care Intervention: A Rapid Qualitative Analysis.Clinical nursing research · 2026Article
- Supervised resistance training in an individual with glioblastoma undergoing chemoradiation: a case report.Frontiers in oncology · 2026Article
- Colorectal cancer incidence, survival analysis and predictions (Monastir, Tunisia: 2002-2030).PloS one · 2026Article
- Systematic review and meta-analysis of digital interventions for mental health in cancer patients and survivors.NPJ digital medicine · 2025Article
- Validity and Reliability of the Self-Care of Chronic Illness Inventory and Self-Care Self-Efficacy Scale in Patients Living With Cancer.Journal of advanced nursing · 2025Article
- Understanding symptoms in the lives of adult patients with acute or chronic illness: a phenomenological study of patient experiences.International journal of qualitative studies on health and well-being · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIndividuals with cancer are being given increasing responsibility for the self-management of their health and illness. In other chronic diseases, individuals who experience treatment burden are at risk of poorer health outcomes. Less is known about treatment burden and its impact on individuals with cancer. This systematic review investigated perceptions of treatment burden in individuals living with and beyond cancer. METHODS AND
findingsMedline, CINAHL and EMBASE databases were searched for qualitative studies that explored treatment burden in individuals with a diagnosis of breast, prostate, colorectal, or lung cancer at any stage of their diagnostic/treatment trajectory. Descriptive and thematic analyses were conducted. Study quality was assessed using a modified CASP checklist. The review protocol was registered on PROSPERO (CRD42021145601). Forty-eight studies were included. Health management after cancer involved cognitive, practical, and relational work for patients. Individuals were motivated to perform health management work to improve life-expectancy, manage symptoms, and regain a sense of normality. Performing health care work could be empowering and gave individuals a sense of control. Treatment burden occurred when there was a mismatch between the resources needed for health management and their availability. Individuals with chronic and severe symptoms, financial challenges, language barriers, and limited social support are particularly at risk of treatment burden. For those with advanced cancer, consumption of time and energy by health care work is a significant burden.
conclusionTreatment burden could be an important mediator of inequities in cancer outcomes. Many of the factors leading to treatment burden in individuals with cancer are potentially modifiable. Clinicians should consider carefully what they are asking or expecting patients to do, and the resources required, including how much patient time will be consumed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.