Evidence map›Paper›PMID 37225263›Full record

ArticleBMJ open gastroenterology2023

Delphi consensus survey: the opinions of patients living with refractory ulcerative proctitis and the health care professionals who care for them.

Maro Kyriacou, Shellie Radford, Gordon W Moran, Focus group collaborators group

Abstract readConsensus Statement
In one paragraph

Article in BMJ open gastroenterology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Maro KyriacouGastroenterology, Nottingham University Hospitals NHS Trust, Nottingham, UK.
Shellie RadfordNottingham Digestive Diseases Centre, Translational Medical Sciences, University of Nottingham University Park Campus, Nottingham, UK shellie.radford1@nottingham.ac.uk.ORCID 0000-0002-2226-0810
Gordon W MoranNottingham Digestive Diseases Centre, Translational Medical Sciences, University of Nottingham University Park Campus, Nottingham, UK.
Focus group collaborators group

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundRefractory ulcerative proctitis presents a huge clinical challenge not only for the patients living with this chronic, progressive condition but also for the professionals who care for them. Currently, there is limited research and evidence-based guidance, resulting in many patients living with the symptomatic burden of disease and reduced quality of life. The aim of this study was to establish a consensus on the thoughts and opinions related to refractory proctitis disease burden and best practice for management.

methodsA three-round Delphi consensus survey was conducted among patients living with refractory proctitis and the healthcare experts with knowledge on this disease from the UK. A brainstorming stage involving a focus group where the participants came up with an initial list of statements was completed. Following this, there were three rounds of Delphi surveys in which the participants were asked to rank the importance of the statements and provide any additional comments or clarifications. Calculation of mean scores, analysis of comments and revisions were performed to produce a final list of statements.

resultsIn total, 14 statements were suggested by the focus group at the initial brainstorming stage. Following completion of three Delphi survey rounds, all 14 statements reached consensus following appropriate revision.

conclusionsWe established consensus on the thoughts and opinions related to refractory proctitis from both the experts who manage this disease and the patients living with it. This represents the first step towards developing clinical research data and ultimately the evidence needed for best practice management guidance of this condition.

Indexed as

Colitis, UlcerativeProctitisDelphi TechniqueHealth PersonnelHumansQuality of LifeADJUVANT TREATMENTINFLAMMATORY BOWEL DISEASEULCERATIVE COLITIS

Identifiers

PMID37225263
PMCPMC10230891

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