Evidence map›Paper›PMID 37214775›Full record

ArticleFrontiers in aging2023

Highlighting the value of Alzheimer's disease-focused registries: lessons learned from cancer surveillance.

Margaret C Miller, Rana Bayakly, Bernard G Schreurs, Kimberly J Flicker, Swann Arp Adams, Lucy A Ingram, James W Hardin, Matthew Lohman, Marvella E Ford, Quentin McCollum and 4 more

Abstract read
In one paragraph

Article in Frontiers in aging, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Margaret C MillerDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, United States.
Rana BayaklyGeorgia Department of Public Health, Atlanta, GA, United States.
Bernard G SchreursDepartment of Neuroscience, Rockefeller Neuroscience Institute, West Virginia University, Morgantown, WV, United States.
Kimberly J FlickerOffice of the Study of Aging, University of South Carolina, Columbia, SC, United States.
Swann Arp AdamsDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, United States.
Lucy A IngramOffice of the Study of Aging, University of South Carolina, Columbia, SC, United States.
James W HardinDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, United States.
Matthew LohmanDepartment of Epidemiology and Biostatistics, Arnold School of Public Health, University of South Carolina, Columbia, SC, United States.
Marvella E FordDepartment of Public Health Sciences, College of Medicine, Medical University of South Carolina, Charleston, SC, United States.
Quentin McCollumCollege of Social Work, University of South Carolina, Columbia, SC, United States.
Audrey McCrary-QuarlesDepartment of Health Sciences, South Carolina State University, Orangeburg, SC, United States.
Oluwole AriyoDepartment of Biology, Allen University, Columbia, SC, United States.
Sue E LevkoffCollege of Social Work, University of South Carolina, Columbia, SC, United States.
Daniela B FriedmanOffice of the Study of Aging, University of South Carolina, Columbia, SC, United States.

Funding

South Carolina Cancer Disparities Research Center (SC CADRE)U54CA210962 · NCI · MEDICAL UNIVERSITY OF SOUTH CAROLINA · PI FORD, MARVELLA ELIZABETH · 2017 to 2023
$6.7M
South Carolina Cancer Disparities Research Center (SC CaDRe)U54CA210963 · NCI · SOUTH CAROLINA STATE UNIVERSITY · PI MCCRARY-QUARLES, AUDREY · 2017 to 2023
$6.1M
Carolina Center on Alzheimer's Disease and Minority Research (CCADMR)P30AG059294 · NIA · UNIVERSITY OF SOUTH CAROLINA AT COLUMBIA · PI HARDIN, JAMES WILLIAM · 2018 to 2022
$3.2M
Promoting High-Impact Alzheimer's Disease Research through the Use of Statewide Registries: Expanding Diversity in Aging Research.R13AG074603 · NIA · UNIVERSITY OF SOUTH CAROLINA AT COLUMBIA · PI FRIEDMAN, DANIELA B., INGRAM, LUCY ANNANG · 2021 to 2025
$231k
NCI NIH HHS U54 CA210962NCI NIH HHS U54 CA210963NIA NIH HHS P30 AG059294NIA NIH HHS R13 AG074603
6 · The paper itself

Abstract

Like cancer, Alzheimer's disease and related dementias (ADRD) comprise a global health burden that can benefit tremendously from the power of disease registry data. With an aging population, the incidence, treatment, and mortality from ADRD is increasing and changing rapidly. In the same way that current cancer registries work toward prevention and control, so do ADRD registries. ADRD registries maintain a comprehensive and accurate registry of ADRD within their state, provide disease prevalence estimates to enable better planning for social and medical services, identify differences in disease prevalence among demographic groups, help those who care for individuals with ADRD, and foster research into risk factors for ADRD. ADRD registries offer a unique opportunity to conduct high-impact, scientifically rigorous research efficiently. As research on and development of ADRD treatments continue to be a priority, such registries can be powerful tools for conducting observational studies of the disease. This perspectives piece examines how established cancer registries can inform ADRD registries' impact on public health surveillance, research, and intervention, and inform and engage policymakers.

Indexed as

agingAlzheimer’s disease and related dementiascancerdata infrastructuredata managementdisease registriesdisease surveillancepublic health

Identifiers

PMID37214775
PMCPMC10196140

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.