Evidence map›Paper›PMID 37214507›Full record

ArticlePEC innovation2023

Development of a storytelling communication facilitation tool (SCFT) to facilitate discussion of complex genetic diagnoses between parents and their children: A pilot study using 22q11.2 deletion syndrome as a model condition.

Simina Bogatan, Andrea Shugar, Syed Wasim, Susan Ball, Cathryn Schmidt, David Chitayat, Cheryl Shuman, Cheryl Cytrynbaum

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in PEC innovation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
0.2field-weighted citation impact, top 51% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed, 2 citations in OpenAlex.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 3 institutions in 1 country.

Simina BogatanDepartment of Molecular Genetics, University of Toronto, Toronto, Canada.
Andrea ShugarDepartment of Molecular Genetics, University of Toronto, Toronto, Canada.
Syed WasimFred A. Litwin Family Centre in Genetic Medicine, University Health Network and Mount Sinai Hospital, Toronto, Canada.
Susan BallAboutKidsHealth, SickKids Learning Institute, The Hospital for Sick Children, Toronto, Canada.
Cathryn SchmidtAboutKidsHealth, SickKids Learning Institute, The Hospital for Sick Children, Toronto, Canada.
David ChitayatDepartment of Molecular Genetics, University of Toronto, Toronto, Canada.
Cheryl ShumanDepartment of Molecular Genetics, University of Toronto, Toronto, Canada.
Cheryl CytrynbaumDepartment of Molecular Genetics, University of Toronto, Toronto, Canada.
University of Toronto · CASickKids Foundation · CAUniversity Health Network · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Objective: To develop and evaluate a storytelling communication facilitation tool designed to help parents overcome barriers to discussing a complex multisystem genetic diagnosis with their affected children, using 22q11.2 deletion syndrome (22q11DS) as an exemplar condition. Methods: A story telling communication facilitation tool (SCFT), entitled Results: After viewing Conclusion: Innovation: This novel storytelling communication facilitation tool can serve as a model for the development of other educational tools geared at facilitating disclosure and discussion of other genetic conditions.

Indexed as

22q11.2 deletion syndromeDisclosure of genetic diagnosisFacilitating conversationParent-child communicationStorytelling communication facilitation tool

Identifiers

PMID37214507
PMCPMC10194326
OpenAlexW4310794402

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.