Evidence map›Paper›PMID 37205244›Full record

ReviewMovement disorders clinical practice2023

Transitional Care for Young People with Movement Disorders: Consensus-Based Recommendations from the MDS Task Force on Pediatrics.

Tamara Pringsheim, Amit Batla, Ali Shalash, Jitendra Kumar Sahu, Carlos Cosentino, Darius Ebrahimi-Fakhari, Jennifer Friedman, Jean-Pierre Lin, Jonathan Mink, Alexander Munchau and 13 more

Open access · hybridAbstract readReview
In one paragraph

Review in Movement disorders clinical practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
4.1field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 9 citations in OpenAlex.

  1. Review
  2. Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND).Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

23 authors at 20 institutions in 16 countries.

Tamara PringsheimDepartment of Clinical Neurosciences Psychiatry, Pediatrics and Community Health Sciences, University of Calgary Calgary AB Canada.ORCID https://orcid.org/0000-0002-8229-8431
Amit BatlaDepartment of Clinical and Movement Neuroscience UCL Queen Square Institute of Neurology London UK.ORCID https://orcid.org/0000-0001-8952-2160
Ali ShalashDepartment of Neurology Faculty of medicine, Ain Shams Univeristy Cairo Egypt.
Jitendra Kumar SahuPediatric Neurology Unit, Postgraduate Institute of Medical Education and Research Chandigarh India.
Carlos CosentinoDepartment of Neurodegenerative Diseases Instituto Nacional de Ciencias Neurologicas and School of Medicine, Universidad Nacional Mayor de San Marcos Lima Peru.ORCID https://orcid.org/0000-0003-3677-9856
Darius Ebrahimi-FakhariDepartment of Neurology Boston Children's Hospital, Harvard Medical School Boston MA USA.ORCID https://orcid.org/0000-0002-0026-4714
Jennifer FriedmanDepartments of Neurosciences and Pediatrics UC San Diego San Diego CA USA.
Jean-Pierre LinChildren's Neurosciences, Complex Motor Disorders Service (CMDS) Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust (GSTT), and Women and Children's Health Institute Faculty of Life Sciences & Medicine, Kings Health Partners, King's College London London UK.
Jonathan MinkDepartment of Neurology University of Rochester Rochester NY USA.ORCID https://orcid.org/0000-0002-7867-3710
Alexander MunchauInstitute of Systems Motor Science, University of Lübeck Lübeck Germany.ORCID https://orcid.org/0000-0002-3219-2284
Daniela MunozDepartment of Paediatric Neurology San Borja Arriaran Hospital. University of Chile Santiago Chile.
Nardo NardocciPediatric Neuroscience Department Fondazione IRCCS Istituto Neurologico "C Besta" Milan Italy.
Belen Perez-DueñasDepartment of Pediatric Neurology Hospital Universitari Vall d'Hebrón, Universitat Autònoma de Barcelona. Centre for Biomedical Research of Rare Diseases (CIBERER), ISCIII Madrid Spain.ORCID https://orcid.org/0000-0002-4979-2788
Zomer SardarFCPS, Department of Neurology Columbia University Irving Medical Center/New York Presbyterian Hospital New York NY USA.
Chahnez TrikiDepartment of child neurology Hedi Chaker Hospital, LR10ES15, Sfax Medical School, University of Sfax Tunisia Sfax Tunisia.ORCID https://orcid.org/0000-0003-2918-3819
Hilla Ben-PaziMovement Disorders Clinic, Assuta Ashdod Ahdod Israel.ORCID https://orcid.org/0000-0002-8039-4761
Laura Silveira-MoriyamaDepartment of Neurology University of Campinas (UNICAMP) Campinas Brazil.ORCID https://orcid.org/0000-0003-2184-626X
Monica Troncoso-SchifferliDepartment of Paediatric Neurology San Borja Arriaran Hospital. University of Chile Santiago Chile.
Kyoko HoshinoSegawa Memorial Neurological Clinic for Children Tokyo Japan.ORCID https://orcid.org/0000-0001-6659-7485
Russell C DaleChildren's Hospital at Westmead Clinical School, University of Sydney Sydney NSW Australia.
Victor S C FungMovement Disorders Unit, Department of Neurology Westmead Hospital & Sydney Medical School, University of Sydney Sydney NSW Australia.ORCID https://orcid.org/0000-0003-3085-2282
Manju A KurianDevelopmental Neurosciences Zayed Centre for Research into Rare Disease in Children, GOS-Institute of Child Health, UCL London UK.ORCID https://orcid.org/0000-0003-3529-5075
Emmanuel RozeSorbonne University Paris Brain Institute, Assistance Publique-Hôpitaux de Paris, DMU Neurosciences Paris France.ORCID https://orcid.org/0000-0001-9727-3459
Hospital San Borja Arriarán · CLThe University of Sydney · AUAin Shams University · EGAssuta Medical Center · ILBoston Children's Hospital · USFondazione IRCCS Istituto Neurologico Carlo Besta · ITInstitute of Child Health · INKing's College London · GBNational Hospital for Neurology and Neurosurgery · GBNational University of San Marcos · PENewYork–Presbyterian Hospital · USPost Graduate Institute of Medical Education and Research · INSegawa Neurological Clinic for Children · JPSorbonne Université · FRUC San Diego Health System · USUniversidade Estadual de Campinas (UNICAMP) · BRUniversitat Autònoma de Barcelona · ESUniversity of Calgary · CAUniversity of Lübeck · DEUniversity of Rochester · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: The International Parkinson and Movement Disorders Society (MDS) set up a working group on pediatric movement disorders (MDS Task Force on Pediatrics) to generate recommendations to guide the transition process from pediatrics to adult health care systems in patients with childhood-onset movement disorders. Methods: To develop recommendations for transitional care for childhood onset movement disorders, we used a formal consensus development process, using a multi-round, web-based Delphi survey. The Delphi survey was based on the results of the scoping review of the literature and the results of a survey of MDS members on transition practices. Through iterative discussions, we generated the recommendations included in the survey. The MDS Task Force on Pediatrics were the voting members for the Delphi survey. The task force members comprise 23 child and adult neurologists with expertise in the field of movement disorders and from all regions of the world. Results: Fifteen recommendations divided across four different areas were made pertaining to: (1) team composition and structure, (2) planning and readiness, (3) goals of care, and (4) administration and research. All recommendations achieved consensus with a median score of 7 or greater. Conclusion: Recommendations on providing transitional care for patients with childhood onset movement disorders are provided. Nevertheless several challenges remain in the implementation of these recommendations, related to health infrastructure and the distribution of health resources, and the availability of knowledgeable and interested practitioners. Research on the influence of transitional care programs on outcomes in childhood onset movement disorders is much needed.

Identifiers

PMID37205244
PMCPMC10186998
OpenAlexW4327944927

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.