Evidence map›Paper›PMID 37198879›Full record

ArticlePalliative medicine2023

Serious illness care quality during COVID-19: Identifying improvement opportunities in narrative reports from a National Bereaved Family Survey.

Karleen F Giannitrapani, Matthew D McCaa, Bhagvat J Maheta, Isabella G Raspi, Scott T Shreve, Karl A Lorenz

Open access · greenAbstract read
In one paragraph

Article in Palliative medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.9field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 3 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Karleen F GiannitrapaniVA Quality Improvement Resource Center for Palliative Care, Menlo Park, CA, USA.ORCID 0000-0003-0987-6204
Matthew D McCaaVA Quality Improvement Resource Center for Palliative Care, Menlo Park, CA, USA.
Bhagvat J MahetaVA Quality Improvement Resource Center for Palliative Care, Menlo Park, CA, USA.
Isabella G RaspiVA Quality Improvement Resource Center for Palliative Care, Menlo Park, CA, USA.
Scott T ShreveUnited States Department of Veterans Affairs, VA Palliative Care, Lebanon, PA, USA.
Karl A LorenzVA Quality Improvement Resource Center for Palliative Care, Menlo Park, CA, USA.ORCID 0000-0002-2468-2566
Care Resource · USFlorida State University · USUnited States Department of Veterans Affairs · US

Funding

Building Better Interdisciplinary Pain Teams Across DisciplinesIK2HX003077 · VA · VETERANS ADMIN PALO ALTO HEALTH CARE SYS · PI Karleen Frances Giannitrapani · 2022 to 2026
–
HSRD VA IK2 HX003077
6 · The paper itself

Abstract

backgroundCOVID-19 significantly impacted care delivery to seriously ill patients, especially around including family and caregivers in patient care.

aimBased on routinely collected bereaved family reports, actionable practices were identified to maintain and improve care in the last month of life, with potential application to all seriously ill patients.

designThe Veterans Health Administration's Bereaved Family Survey is used nationally to gather routine feedback from families and caregivers of recent in-patient decedents; the survey includes multiple structured items as well as space for open narrative responses. The responses were analyzed using qualitative content analysis with dual review. SETTING/

participantsBetween February 2020 and March 2021, there were 5372 responses to the free response questions of which 1000 (18.6%) responses were randomly selected. The 445 (44.5%) responses from 377 unique individuals included actionable practices.

resultsBereaved family members and caregivers identified four opportunities with a total of 32 actionable practices. Opportunity 1: Facilitate the use of video communication, included four actionable practices. Opportunity 2: Provide timely and accurate responses to family concerns, included 17 actionable practices. Opportunity 3: Accommodate family/caregiver visitation, included eight actionable practices. Opportunity 4: Offer physical presence to the patient when family/caregivers are unable to visit, included three actionable practices.

conclusionThe findings from this quality improvement project are applicable during a pandemic, but also translate to improving the care of seriously ill patients in other circumstances, such as when family members or caregivers are geographically distant from a loved one during the last weeks of life.

Indexed as

COVID-19Terminal CareCaregiversCritical CareCritical IllnessFamilyHumansPalliative CareQuality of Health CareCOVID-19palliative carequalitative researchquality improvementterminal care

Identifiers

PMID37198879
PMCPMC10195683
OpenAlexW4377011402

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.