Evidence map›Paper›PMID 37189062›Full record

ArticleBMC geriatrics2023

Experiences of caregiving with Alzheimer's disease in the LGBT community.

Carey Candrian, Emily S Burke, Danielle Kline, Alexia M Torke

Open access · goldAbstract read
In one paragraph

Article in BMC geriatrics, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
3.0field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed, 9 citations in OpenAlex.

  1. Article
  2. Article
  3. Neurological care for LGBT+ people.Nature reviews. Neurology · 2024
    Review
  4. 2024 Alzheimer's disease facts and figures.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024
    Article
  5. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 3 institutions in 1 country.

Carey CandrianDivision of General Internal Medicine, University of Colorado School of Medicine, 12631 East 17th Avenue, Aurora, CO, 80045, USA. carey.candrian@cuanschutz.edu.
Emily S BurkeRegenstrief Institute, Indiana University Center for Aging Research, Indianapolis, IN, 46202, USA.
Danielle KlineDivision of General Internal Medicine, University of Colorado School of Medicine, 12631 East 17th Avenue, Aurora, CO, 80045, USA.
Alexia M TorkeDivision of General Internal Medicine and Geriatrics, Indiana University Center for Aging Research, Regenstrief Institute, Indiana University, Indianapolis, IN, 46202, USA.
Regenstrief Institute · USUniversity of Colorado Anschutz Medical Campus · USUniversity of Colorado Denver · US

Funding

Understanding the needs and experiences of surrogate decision makers caring for SGM individuals with Alzheimer's Disease and Related Dementias.K24AG053794 · NIA · OREGON HEALTH & SCIENCE UNIVERSITY · PI TORKE, ALEXIA MARY · 2016 to 2025
$1.8M
NIA NIH HHS K24 AG053794
6 · The paper itself

Abstract

backgroundThe goal of this paper is to develop a more thorough understanding of the experiences of LGBT older adults living with dementia and their caregivers.

methodsA phenomenological approach using in-depth interviews with current or former caregivers of LGBT persons living with Alzheimer's disease (AD) was conducted.

resultsParticipants ranged in age from 44-77 years old; 74% were lesbian, 16% gay, 5% straight, and 5% unknown. Five themes were identified from the analysis: Caregiver tension and isolation; financial stress & security; lack of social support & connection; engineering grief support, and entrapment of past and present stigma and discrimination.

conclusionsDiscrimination related to LGBT status was an important theme over the participants' lives and occurred for several during dementia care. While other themes were similar to prior AD studies, LGBT status affected these other aspects of the caregiving experience. Findings can inform future programs that better meet needs of LGBT people and those who care for them.

Indexed as

Alzheimer DiseaseSexual and Gender MinoritiesAgedCaregiversFemaleHumansSocial StigmaSocial SupportHealth disparitiesLGBT caregiversLGBT older adultsPhenomenologySurrogate decision making

Identifiers

PMID37189062
PMCPMC10184068
OpenAlexW4376610482

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.