ArticleArchives of sexual behavior2023
How to Ensure Inclusivity in Large-Scale General Population Cohort Studies? Lessons Learned with Regard to Including and Assessing Sex, Gender, and Sexual Orientation.
Article in Archives of sexual behavior, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Article
- The Operationalization of Gender in Biomedical Research: A Multidimensional Imperative.Archives of sexual behavior · 2025Article
- Mapping diversity in gender identity and gender roles across sex and age in the Dutch general population: a large-scale cohort study.EClinicalMedicine · 2025Article
- Participants' reactions to the inclusion of Sexual Orientation and Gender Identity (SOGI) measures in an established large-scale cohort: The California Teachers Study.American journal of epidemiology · 2025Article
- Assessment of psychosocial aspects in adults in post-COVID-19 condition: the EURONET-SOMA recommendations on core outcome domains for clinical and research use.BMC medicine · 2025Review
- (Not So) Lost in Translation: Considering the GA4GH Diversity in Datasets Policy in the Japanese Context.Asian bioethics review · 2025Article
- All I Want for Christmas Is a Loo: Visualizations of Sex and Gender on Toilet Doors.Clinical psychology in Europe · 2024Article
- Gender scores in epidemiological research: methods, advantages and implications.The Lancet regional health. Europe · 2024Review
- Describing Non-Binary People's Encounters with the Healthcare System: A Qualitative Study in Catalonia (Spain).Archives of sexual behavior · 2024Article
- Recommendations for a Better Understanding of Sex and Gender in the Neuroscience of Mental Health.Biological psychiatry global open science · 2024Review
- The association of sexual minority status and bullying victimization is modified by sex and grade: findings from a nationally representative sample.BMC public health · 2024Article
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite recent advances in the measurement of sex, gender, and sexual orientation in large-scale cohort studies, the three concepts are still gaining relatively little attention, may be mistakenly equated, or non-informatively operationalized. The resulting imprecise or lacking information hereon in studies is problematic, as sex, gender, and sexual orientation are important health-related factors. Omission of these concepts from general population cohort studies might dismiss participants' identity and experiences and pushes research on sexual or gender minority populations toward purposive sampling, potentially introducing selection bias. It also reinforces the unintentional notion of irrelevance of these concepts to health research, ultimately disadvantaging sexual and gender minority populations. Similarly, a lack of uniform measures on sex, gender, and sexual orientation hampers multi-cohort studies in which data from multiple studies are combined, facilitating increased statistical power. This paper discusses the encountered pitfalls and lessons learned on including and assessing sex, gender, and sexual orientation in large-scale general population cohort studies, exemplified by the Dutch Lifelines Cohort Study. Additionally, we propose hands-on strategies on how to operationalize these concepts in an inclusive manner that is useful for large-scale general population cohort studies.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.