Evidence map›Paper›PMID 37180826›Full record

ArticlePulmonary circulation2023

"It's that invisible illness": Patient and clinician perspectives on outcomes in pulmonary arterial hypertension treatment.

Catherine L Auriemma, Jasleen Minhas, Randi Blue, Tess Lapatra, Steven M Kawut, Katherine R Courtright

Open access · goldAbstract read
In one paragraph

Article in Pulmonary circulation, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.5field-weighted citation impact, top 30% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 2 citations in OpenAlex.

  1. Trial
  2. Article
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Catherine L AuriemmaDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.ORCID 0000-0003-4803-0375
Jasleen MinhasDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.
Randi BlueDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.
Tess LapatraDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.
Steven M KawutDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.
Katherine R CourtrightDepartment of Medicine Perelman School of Medicine at the University of Pennsylvania Philadelphia Pennsylvania USA.
University of Pennsylvania · US

Funding

Mentored Patient-Oriented Research in Pulmonary Arterial HypertensionK24HL103844 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI KAWUT, STEVEN M · 2011 to 2020
$1.6M
Developing and Evaluating Quality-Weighted Hospital-Free Days as a Novel, Patient-Centered Outcome for Trials of Patients with Acute Respiratory FailureK23HL163402 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI Catherine Louise Auriemma · 2022 to 2026
$1.0M
Identifying palliative care needs among hospitalized patients with chronic obstructive pulmonary diseaseK23HL143181 · NHLBI · UNIVERSITY OF PENNSYLVANIA · PI COURTRIGHT, KATHERINE RINALDI · 2018 to 2022
$809k
NHLBI NIH HHS K23 HL143181NHLBI NIH HHS K23 HL163402NHLBI NIH HHS K24 HL103844NHLBI NIH HHS L30 HL154185
6 · The paper itself

Abstract

Knowledge of what outcomes are most meaningful to pulmonary arterial hypertension (PAH) stakeholders is limited. In this qualitative study, patients and clinicians endorsed personalized physical activity, symptoms, and psychosocial well-being as key outcomes to assess PAH treatment response, yet few are routinely measured in PAH clinical trials.

Indexed as

outcomespulmonary hypertensionqualitative research

Identifiers

PMID37180826
PMCPMC10166884
OpenAlexW4376643343

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.